| Scale | Questions | |
|---|---|---|
| Physical functioning | 1 | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? |
| 2 | Do you have any trouble taking a long walk? | |
| 3 | Do you have any trouble taking a short walk outside of the house? | |
| 4 | Do you need to stay in bed or a chair during the day? | |
| 5 | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| 6 | Do you have any trouble doing light household work, like cooking, washing dishes, and ironing? | |
| 7 | Do you have any trouble doing light activities, like carrying light objects, sitting/standing with some walking, e.g. a desk job? | |
| 8 | Do you have any mobility troubles? | |
| Role functioning | 9 | Were you limited in doing either your work or other daily activities? |
| 10 | Were you limited in pursuing your hobbies or other leisure time activities? | |
| Emotional functioning | 11 | Did you feel tense? |
| 12 | Did you worry? | |
| 13 | Did you feel irritable? | |
| 14 | Did you feel depressed? | |
| Cognitive functioning | 15 | Have you had difficulty in concentrating on things, like reading a newspaper or watching television? |
| 16 | Have you had difficulty remembering things? | |
| Unspecified psychological functioning | 17 | Have you had trouble sleeping? |
| 18 | Were you worried about your health in the future? | |
| 19 | Have you worried about your weight? | |
| 20 | Did you feel guilty? | |
| 21 | Did you feel sad about being ill? | |
| 22 | Did you feel insecure? | |
| 23 | Did you worry about your future health? | |
| 24 | Did you worry about people's concern? | |
| Social functioning | 25 | Has your physical condition or medical treatment interfered with your family life? |
| 26 | Has your physical condition or medical treatment interfered with your social activities? | |
| 27 | Has your physical condition or medical treatment caused you financial difficulties? | |
| Body image | 28 | Have you felt physically less attractive as a result of your disease or treatment? |
| 29 | Have you been feeling less feminine/masculine as a result of your disease or treatment? | |
| 30 | Have you been dissatisfied with your body? | |
| Pain | 31 | Have you had pain? |
| 32 | Did pain interfere with your daily activities? | |
| Fatigue | 33 | Did you need to rest? |
| 34 | Have you felt weak? | |
| 35 | Were you tired? | |
| Upper gastrointestinal tract | 36 | Have you felt nauseated? |
| 37 | Have you vomited? | |
| Lower gastrointestinal tract | 38 | Have you been constipated? |
| 39 | Have you had diarrhoea? | |
| 40 | Have you had blood in your stools? | |
| 41 | Have you had mucus in your stools? | |
| Unspecified gastrointestinal tract | 42 | Did you have abdominal pain? |
| 43 | Did you have pain in your buttocks/anal area/rectum? | |
| 44 | Did you have a bloated feeling in your abdomen? | |
| 45 | Did you have a dry mouth? | |
| Stoma‐related | 46 | Have you had unintentional release of gas/flatulence from your stoma bag? |
| 47 | Have you had leakage of stools from your stoma bag? | |
| 48 | Have you had sore skin around your stoma? | |
| 49 | Did frequent bag changes occur during the day? | |
| 50 | Did frequent bag changes occur during the night? | |
| 51 | Did you feel embarrassed because of your stoma? | |
| 52 | Did you have problems caring for your stoma? | |
| Bowel‐related (no stoma) | 46 | Have you had unintentional release of gas/flatulence from your back passage? |
| 47 | Have you had leakage of stools from your back passage? | |
| 48 | Have you had sore skin around your anal area? | |
| 49 | Did frequent bowel movements occur during the day? | |
| 50 | Did frequent bowel movements occur during the night? | |
| 51 | Did you feel embarrassed because of your bowel movement? | |
| Urinary tract | 53 | Did you urinate frequently during the day? |
| 54 | Did you urinate frequently during the night? | |
| 55 | Have you had any unintentional release (leakage) of urine? | |
| 56 | Did you have pain when you urinated? | |
| Chemotherapy‐related | 57 | Have you lost hair as a result of your treatment? |
| 58 | Have you had problems with your sense of taste? | |
| 59 | Have you had tingling in hand/feet? | |
| Sexual‐related (men) | 60 | To what extent were you interested in sex? |
| 61 | Did you have difficulty getting or maintaining an erection? | |
| Sexual‐related (women) | 62 | To what extent were you interested in sex? |
| 63 | Did you have pain or discomfort during intercourse? | |
| Single item | 64 | Have you lacked appetite? |
| Single item | 65 | Were you short of breath? |
| Single item | 66 | Have you had fevers? |
| Single item | 67 | Have you felt unwell? |
Note: Symptom, functioning scales and single items according to the EORTC QLQ‐C30 and QLQ‐CR29 scoring manuals (Aaronson et al., 1993; Whistance et al., 2009), which has been complemented with items of other validated questionnaires (Eypasch et al., 1995; Tuinman et al., 2008; Ward et al., 1999; Wendel‐Vos et al., 2003).