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. 2022 Apr 25;31(5):e13601. doi: 10.1111/ecc.13601
Scale Questions
Physical functioning 1 Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?
2 Do you have any trouble taking a long walk?
3 Do you have any trouble taking a short walk outside of the house?
4 Do you need to stay in bed or a chair during the day?
5 Do you need help with eating, dressing, washing yourself or using the toilet?
6 Do you have any trouble doing light household work, like cooking, washing dishes, and ironing?
7 Do you have any trouble doing light activities, like carrying light objects, sitting/standing with some walking, e.g. a desk job?
8 Do you have any mobility troubles?
Role functioning 9 Were you limited in doing either your work or other daily activities?
10 Were you limited in pursuing your hobbies or other leisure time activities?
Emotional functioning 11 Did you feel tense?
12 Did you worry?
13 Did you feel irritable?
14 Did you feel depressed?
Cognitive functioning 15 Have you had difficulty in concentrating on things, like reading a newspaper or watching television?
16 Have you had difficulty remembering things?
Unspecified psychological functioning 17 Have you had trouble sleeping?
18 Were you worried about your health in the future?
19 Have you worried about your weight?
20 Did you feel guilty?
21 Did you feel sad about being ill?
22 Did you feel insecure?
23 Did you worry about your future health?
24 Did you worry about people's concern?
Social functioning 25 Has your physical condition or medical treatment interfered with your family life?
26 Has your physical condition or medical treatment interfered with your social activities?
27 Has your physical condition or medical treatment caused you financial difficulties?
Body image 28 Have you felt physically less attractive as a result of your disease or treatment?
29 Have you been feeling less feminine/masculine as a result of your disease or treatment?
30 Have you been dissatisfied with your body?
Pain 31 Have you had pain?
32 Did pain interfere with your daily activities?
Fatigue 33 Did you need to rest?
34 Have you felt weak?
35 Were you tired?
Upper gastrointestinal tract 36 Have you felt nauseated?
37 Have you vomited?
Lower gastrointestinal tract 38 Have you been constipated?
39 Have you had diarrhoea?
40 Have you had blood in your stools?
41 Have you had mucus in your stools?
Unspecified gastrointestinal tract 42 Did you have abdominal pain?
43 Did you have pain in your buttocks/anal area/rectum?
44 Did you have a bloated feeling in your abdomen?
45 Did you have a dry mouth?
Stoma‐related 46 Have you had unintentional release of gas/flatulence from your stoma bag?
47 Have you had leakage of stools from your stoma bag?
48 Have you had sore skin around your stoma?
49 Did frequent bag changes occur during the day?
50 Did frequent bag changes occur during the night?
51 Did you feel embarrassed because of your stoma?
52 Did you have problems caring for your stoma?
Bowel‐related (no stoma) 46 Have you had unintentional release of gas/flatulence from your back passage?
47 Have you had leakage of stools from your back passage?
48 Have you had sore skin around your anal area?
49 Did frequent bowel movements occur during the day?
50 Did frequent bowel movements occur during the night?
51 Did you feel embarrassed because of your bowel movement?
Urinary tract 53 Did you urinate frequently during the day?
54 Did you urinate frequently during the night?
55 Have you had any unintentional release (leakage) of urine?
56 Did you have pain when you urinated?
Chemotherapy‐related 57 Have you lost hair as a result of your treatment?
58 Have you had problems with your sense of taste?
59 Have you had tingling in hand/feet?
Sexual‐related (men) 60 To what extent were you interested in sex?
61 Did you have difficulty getting or maintaining an erection?
Sexual‐related (women) 62 To what extent were you interested in sex?
63 Did you have pain or discomfort during intercourse?
Single item 64 Have you lacked appetite?
Single item 65 Were you short of breath?
Single item 66 Have you had fevers?
Single item 67 Have you felt unwell?

Note: Symptom, functioning scales and single items according to the EORTC QLQ‐C30 and QLQ‐CR29 scoring manuals (Aaronson et al., 1993; Whistance et al., 2009), which has been complemented with items of other validated questionnaires (Eypasch et al., 1995; Tuinman et al., 2008; Ward et al., 1999; Wendel‐Vos et al., 2003).