Table 3.
Patient‐reported HPN‐QoL scores.
| Scale | Extremely satisfied–satisfied (n = 116), mean (SD) | Neither–extremely dissatisfied (n = 65), mean (SD) | Overall (N = 181), mean (SD) |
|---|---|---|---|
| Functional scales (higher score = better functioning) | |||
| General health | 70.26 (22.58) | 60.00 (24.92) | 66.57 (23.90) |
| Ability to eat/drink | 56.90 (24.48) | 55.64 (22.30) | 56.45 (23.67) |
| Coping | 45.21 (23.11) | 32.31 (21.49) | 40.58 (23.32) |
| Physical function | 38.22 (21.79) | 33.33 (21.19) | 36.46 (21.65) |
| Employment | 36.35 (31.74) | 31.03 (30.03) | 34.44 (31.16) |
| Ability to holiday/travel | 30.93 (25.30) | 25.19 (23.85) | 28.87 (24.87) |
| Sexual function | 23.99 (26.77) | 23.85 (23.75) | 23.94 (25.66) |
| Emotional function | 23.92 (26.00) | 12.18 (19.82) | 19.71 (24.56) |
| Symptom scales (higher score = worse symptoms) | |||
| Fatigue | 58.48 (30.10) | 69.49 (25.78) | 62.43 (29.04) |
| Sleep pattern | 45.69 (32.46) | 60.00 (32.91) | 50.83 (33.25) |
| Weight | 42.53 (36.67) | 60.00 (32.38) | 48.80 (36.09) |
| Body image | 40.37 (26.57) | 52.82 (26.12) | 44.84 (27.01) |
| Immobility | 37.76 (26.17) | 44.51 (24.84) | 40.18 (25.83) |
| Presence of stoma or no stomab | 38.94 (22.02) | 41.20 (24.17) | 39.75 (22.78) |
| Financial issues | 36.49 (38.06) | 43.08 (37.60) | 38.86 (37.93) |
| Other painc | 35.34 (25.55) | 40.51 (29.61) | 37.20 (27.11) |
| Gastrointestinal symptoms | 28.54 (22.85) | 29.40 (23.03) | 28.85 (22.85) |
| HPN scales (higher score = better functioning) | |||
| Ambulatory pumpd | 87.08 (24.59) | 70.00 (32.73) | 81.39 (28.60) |
| Nutrition team | 68.10 (32.42) | 64.10 (25.21) | 66.67 (30.02) |
| HPN‐QoL numerical rating scalee | 17.10 (20.99) | 1.69 (19.67) | 11.57 (21.77) |
Abbreviations: HPN, home parenteral nutrition; HPN‐QoL, Home Parenteral Nutrition‐Quality of Life; SD, standard deviation.
aScores are standardized on a 0–100 scale; 50 represents the average score for the general population (SD = 10).
b
Questions related to stoma care or bowel movements.
c
Pain experienced by patients, other than pain related to gastrointestinal symptoms.
d
Of 181 patients, 120 answered questions about an ambulatory pump.
e
HPN‐QoL numerical rating scale raw scores were scaled from –33.3 to 66.6; higher score indicates higher quality of life.