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. 2022 Apr 19;28(4):588–609. doi: 10.1111/hae.14572
Spontaneously mentioned attributes
Lifespan of efficacy of gene therapy
Level of knowledge and research on gene therapies
Family opinions on gene therapy
Impact on working life
Management of patient post‐intervention
Viral shedding
Alcohol consumption
Additional treatments after intervention (e.g., steroids)
Underlying conditions
Patient lifestyle
Patient adherence
Costs associated with gene therapy
Certainty of risks/outcomes/duration
Emotional and identity changes