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. 2022 Oct 8;30(12):10263–10272. doi: 10.1007/s00520-022-07394-8

Table 1.

Caregiver Navigator Competencies

Competency
(based on Valverde et al. [12]
Performance goals Training activities Learning strategy Format/supervising role Approximate duration
Initial training and continuing education
Sensitivity to ethical, cultural, and professional issues
Understand performance expectations and understand the role of the caregiver navigator Meeting to review expectations and evaluation criteria One-on-one discussion # In-person meeting with Principal Investigator (PI) and Lab Manager

Initial training:

1 h

(Yearly continuing education)

Understand and respect principles of safety, confidentiality, and ethics

CITI research basics training

Discuss policies regarding high-risk caregiver referral

Lectures and written materials + 

Independent review of written and online materials

In-person meetings with PI and social work staff

Initial training:

3 days

(Yearly continuing education)

Understand and follow institutional rules and regulations

Institutional health and safety training

Review of institutional website, available resources, campus tours

Lectures and written materials + 

Independent review of written and online materials

Staff-directed in- person tours

Initial training:

3 days

(Yearly continuing education)

Research knowledge

Understand rationale for the study and general research methodology

Apply research knowledge to study procedures

Review of study protocol and caregiver navigation manual

Review of all study resource documents

Meetings with PI and study staff

Written materials + 

In-person group meetings #

Independent review of written and online materials

One-on-one and team meetings, coordinated by PI

Initial training:

2 weeks

(Continuing education as needed)

Health and caregiving knowledge
Demonstrate knowledge of the caregiving and neuro-oncology biopsychosocial experience, including barriers to caregiver social support, patient clinical experiences, and end-of-life issues

Directed readings from the Handbook of Psycho-Oncology

Review of national cancer organization websites

Watch recorded lectures on the effects of a brain tumor on the patient and implications for caregivers (UCSF resource)

Written materials, web-based materials, video lectures +  Independent review of written and online materials, videos

Initial training:

1 week

Communication/interpersonal skills
Demonstrate effective and professional communication with caregivers based on their needs, goals, strengths, barriers, solutions, and resources

Readings and discussion regarding documentation, confidentiality, communication, boundaries, professionalism, and ethics

Presentation and discussion of situational navigation vignettes

Shadowing patient navigator

Written materials + 

Group meetings, shadowing #

Independent review of written and online materials

Virtual discussion with team members, coordinated by PI

In-person patient navigator shadowing, coordinated by PI

Initial training:

3 h

Foster trust and collaboration between the caregiver, research, and clinical teams in meetings and informal communication

Shadowing and meeting with clinic oncologist, social worker, nurse

Review of patient/caregiver blogs

Group interview with neuro-oncology patient and caregiver

Bimonthly all-team project meetings

Written materials (blogs) + 

Individual and group meetings, shadowing #

Review of written and online materials

In-person and group interviews, clinical shadowing, coordinated by PI

Initial training:

3 days

(Continuing education: 1 h/month)

Develop and demonstrate empathic and culturally-competent communication to maintain positive interpersonal interactions Role-play assessment, problem-solving, empathy, active listening, difficult conversations, with feedback Role play and feedback # In-person role-play with navigation expert & clinical psychologist, coordinated by PI

Initial training:

1 day

Initial training and ongoing supervision
Caregiver coordination

Conduct caregiver assessments (i.e., assess needs, goals, self-management, behaviors, and strategies for improvement) using theory-based techniques, documentation, confidentiality/privacy, professional boundaries, and ethics

Demonstrate knowledge regarding resources available to address caregiver needs

Role play protocol sessions with feedback

Review and discuss participant sessions and documentation

Role play and feedback #

In-person role-play with PI, clinical psychologist, anthropologist, other team members, coordinated by PI and Lab Manager

Ongoing PI supervision, navigation expert consultation

Initial training:

2 weeks

Ongoing intensive quarterly review and weekly check-ins (1 h)

Practice-based learning
Optimize navigator practice through continual professional development and the assimilation of scientific evidence, based on individual patient navigator gaps in knowledge, skills, attitudes, and abilities, to continuously improve in the role

Log training and lessons learned

Debrief about own comfort, emotions, and connections around material

Request additional support/ resources

Individual reflection, Debriefing #

Independent diary writing

In-person and virtual one-on-one meetings with PI, Lab Manager, or staff; coordinated by PI and Lab Manager (or by navigator request)

1–2 h/week, as needed
Systems-based practice
Monitor and evaluate resources for caregivers to meet needs and ensure quality Independently verify and identify unique caregiver resources Web- and phone-based searches # Independent web and phone research, reviewed by PI 1–2 h/month
Monitor and cultivate relationships within the broader research and clinical system to identify potential resources for caregivers and ensure program effectiveness Engage in ongoing collaborative dialogue with institutional research and clinical staff Individual/ group meetings # Independently-initiated interactions; meetings may be coordinated by PI 1–2 h/week

 + indicates passive learning strategy; # indicates active learning strategy