TABLE 3.

Barriers to participation and preferences for a patient navigator

	Parents (n = 146)	Adult (n = 198)
	Mean (SD)	Mean (SD)	P
	Barriers to participation
Barriers (1 = no barrier, 4 = serious barrier)
Lack of knowledge regarding opportunities	2.96 (1.09)	2.73 (1.10)	0.055
Need for instruction	2.46 (0.94)	2.68 (1.12)	0.048
Expense of activity equipment	2.38 (1.10)	2.92 (1.07)	<0.001*
Expense of the activity	2.37 (1.03)	2.64 (1.03)	0.017
Caregiver availability	2.24 (1.11)	2.18 (1.09)	0.618
Transportation	1.58 (0.88)	2.28 (1.17)	<0.001*
Navigator type preference (1 = least preferred, 3 = neutral, 5 = most preferred)	Preferences for a patient navigator
An individual active in ASR	4.05 (0.86)	4.16 (0.94)	0.267
A website for information and resource	3.70 (1.08)	3.57 (1.38)	0.345
An individual with a healthcare background	3.49 (0.87)	3.46 (1.19)	0.796
An online community I can join as a member	3.38 (1.19)	3.18 (1.40)	0.164
A parent of a child with a disability	3.28 (0.87)	N/A
An individual/peer with a disability	2.90 (0.85)	3.30 (1.09)	<0.001*
An App I can access on my mobile device	2.84 (1.30)	2.72 (1.44)	0.427
Navigator access (1 = least preferred, 3 = neutral, 5 = most preferred)
Meet with service provider at the activity of interest	4.01 (1.04)	3.92 (1.19)	0.465
Access this service at my child’s school	3.69 (1.19)	N/A
Access this service through a website	3.59 (1.19)	3.35 (1.40)	0.095
Assess this service through an App on my mobile device	3.06 (1.26)	2.75 (1.44)	0.038
Meet with service provider at my regularly scheduled doctor visits	2.34 (1.31)	2.76 (1.42)	0.005*

Parents is parents of a child with a disability younger than 18 yrs who responded on behalf of their child. Adult is an adult with a disability.

^*P < 0.01.