Table 2.
Data Collection Timepoint | Respondent | Data Collection Method * | Instrument |
---|---|---|---|
Baseline (1 week prior to intervention period) | Caregiver | Questionnaire | CMAI |
PSQI | |||
ESS | |||
QOL-AD – CG report** | |||
CWBS | |||
SF-12 | |||
Demographics form | |||
Health History form | |||
Interview | NPI | ||
RAID – CG report ** | |||
PWD | Interview | MoCA | |
RAID – PWD report ** | |||
QOL-AD – PWD report ** | |||
Post-Intervention (1 week after intervention period) | Caregiver | Questionnaire | CMAI |
PSQI | |||
ESS | |||
QOL-AD – CG report ** | |||
CWBS | |||
SF-12 | |||
WBIAT – CG version | |||
Health History Update | |||
Interview | NPI | ||
RAID – CG report ** | |||
PWD | Interview | MoCA | |
RAID – PWD report ** | |||
QOL-AD – PWD report ** | |||
Questionnaire | WBIAT – PwD version |
Note. CG caregiver, CMAI Cohen-Mansfield Agitation Inventory-Relatives version, CWBS Caregiver Well-Being Scale, ESS Epworth Sleepiness Scale, MoCA Montreal Cognitive Assessment Test, NPI Neuropsychiatric Inventory, PWD person with dementia, RAID Rating Anxiety in Dementia Scale, SF-12 Optum SF-12v.2 Health Survey
Caregivers completed questionnaires electronically or by hardcopy based on their preference. Participants with dementia completed the WBIAT – PwD version by hardcopy questionnaire only. Interviews were conducted virtually or by telephone based on the participant preference.
The RAID and QOL-AD are both completed independently by self-report by the person with dementia and by the caregiver by proxy for the person with dementia. All other measures are completed by either the person with dementia, or the caregiver.