Table 1. Intended impact of using EPaCCS and methods of measurement.
| Theme | Intended Impact | Number of responses | Total CCGs (N = 69) n (%) | |
|---|---|---|---|---|
| With EPaCCS (N = 57) n (%) | Planning* (N = 12) n (%) | |||
| Access to information | Timely access to documented and shared care plans and patient preferences for care | 28 (47) | 3 (25) | 31 (45) |
| Care coordination | Support coordination, continuity and delivery of patient-centred care between different health professionals and services. | 29 (49) | 9 (75) | 38 (55) |
| Health professional practice | Improve identification of patients with palliative diagnosis and in last year of life | 4 (7) | 0 | 4 (6) |
| Family outcomes | Improve experience of end-of-life care for families | 12 (20) | 1 (8) | 13 (19) |
| Patient outcomes | Increase likelihood of respecting patient wishes and priorities—e.g. PPC/D, CPR | 40 (68) | 9 (75) | 49 (71) |
| Better conversations–(e.g. appropriate timing and content) | 22 (37) | 2 (17) | 24 (35) | |
| Types of data used to measure impact | ||||
| Concordance with patient stated preferences for place of care and death with attainment | 29 (50) | 9 (75) | 38 (55) | |
| Number of patients with an EPaCCS record | 11 (19) | - | 11 (16) | |
| Number of Hospital admissions and/or hospital attendances | 10 (18) | 5 (42) | 15 (22) | |
| Frequency of health professionals access to EPaCCS records | 6 (11) | - | 6 (9) | |
| Number of ambulance call-outs | 5 (9) | - | 5 (7) | |
| Completion of ACP information in EPaCCS records | 5 (9) | 1 (8) | 6 (9) | |
| Number of calls to community nurses or out of hours | 1 (2) | - | 1 (1) | |
| Methods used to measure impact | ||||
| Feedback or surveys from health professionals and/or patients and families | 20 (35) | 3 (25) | 23 (33) | |
| Comparative analyses or benchmarking between CCGs (e.g. comparison of EPaCCS records across general practices in a CCG, dashboard linking impact on indicators to outcomes) | 18 (32) | 3 (25) | 21 (30) | |
| Audit (e.g. case note review of patients’ EPaCCS data against the baselines and outcomes defined in local, regional and national standards, and retrospective death audits) | 10 (18) | 2 (16) | 12 (17) | |
| Case studies | 10 (18) | - | 10 (14) | |
* = No response from 1 CCG in planning. Counts represent the number of CCGs that mentioned each “impact” in the respective group for both those with EPaCCS and those with EPaCCS in planning. ‘-‘ indicates no data was provided for the category.