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. 2022 Oct 14;17(10):e0275991. doi: 10.1371/journal.pone.0275991

Table 3. Summary of key findings and their implications.

What is already known on this topic? • Digital approaches to facilitate the collection, recording and sharing of information to support palliative and end-of-life care delivery are being developed in countries including the UK, United States and Australia
• Policy has supported the use of Electronic Palliative Care Coordination Systems (EPaCCS) in England since 2008
• It is not known which characteristics of EPaCCS are perceived as beneficial to care delivery or constraining to implementation
What this study adds • There is considerable variation in how EPaCCS have been implemented across England
• Most EPaCCS do not allow sharing of information with care homes and social care staff, who often have central roles in end-of-life care
• There is limited alignment between the intended impact of EPaCCS and the current methods being used to monitor and assess whether impact is being realised
• Around one-third of people have an EPaCCS record at death and these are more commonly created for people with a diagnosis of cancer
How this study might affect research, practice or policy • The proportion of people dying with an EPaCCS record does not meet conservative population-based estimates of palliative need, despite policy ambitions for EPaCCS to support early identification of patients
• Patient and caregiver perspectives on EPaCCS are lacking and should be incorporated into the development of systems to ensure they facilitate and support patient-centred care
• Future successful implementation and evolution of EPaCCS is likely to need stronger stakeholder engagement and better interoperability