TABLE 2.
Feedback on experience of CGM virtual start—advantages, challenges and preferences.
Sub-theme | Example quote |
---|---|
Theme 1: Advantages to starting CGM through telehealth-based care | |
Access to high-quality care |
It was the same as if I were in the room. (FG5, father, daughter aged 5)
I think it went as well as it would have if we'd been there in person, you know? I do not think anything would have been different, really. (Int1, mother, son aged 17) They sent us the equipment and it was fine. I wasn't sure how it was gonna go…but it was relatively easy…we learned what we needed to. (FG3, mother, daughter aged 10) |
Convenience: lack of travel & ease of scheduling |
For us, we would have had to drive three hours…being at home was much more convenient, and I think it's just as effective. (FG2, mother, son aged 9)
[My son] was having finals week…he had some stuff we could not pull him away from. We were able to do it over a lunch hour from school. If we had to drive [to clinic] we could not have gone up and made it back in time for his school stuff. [Telehealth] made it possible to squeeze it in instead of delaying it for weeks until [my son] was gonna be free (Int1, mother, son aged 17) |
Being in the comfort of home |
It was very comforting for me to be able to just sit and do it in our house where [my child is] comfortable. (FG1, mother, daughter aged 3)
Having a comfort of home helps, especially given that this procedure will have to continue and happen on a day-to-day basis (FG1, son aged 2) |
Type 1 diabetes care as part of life at home |
It was great that we were able to be at home…we were forced to do it where, maybe had we been in the office I cannot help but wonder if we would've relied on the nurse and then probably would've had to do a follow-up call going, ‘How do you do this again?’ (FG1, mother, son aged 16)
This [telehealth] is the way the world is now. We were just used to it. [My daughter] just put [the CGM] on and got a lot of esteem out of it. She feels very accomplished when she's able to do things. (FG4, father, daughter aged 10) |
Easy to do |
It's pretty user friendly for the most part (FG4, mother, daughter aged 10)
There was good peace of mind and plenty of information provided, that it was easy. (FG2, mother, son aged 9) |
Provider also used CGM |
It's a little more helpful, having that personal interaction where somebody who is actually dealing with it can tell you ‘This is what works for me.’ (FG2, father, son aged 9)
Just the fact that she went through it with him step by step, and she did it too, I think that was important to both of us. You're not a stranger in a strange world. (Int2, mother, son aged 12) |
Theme 2. Challenges of starting CGM through telehealth-based care | |
Intimidating & challenging, felt less supported |
I was really scared. I did not think I would be able to do it. (FG1, mother, daughter aged 5)
It's a little intimidating at first, thinking we are gonna insert something on our kid's body. (FG2, mother, son aged 9) The box [of supplies] showed up in front of my house, and I did not know anything about what was in it. (Int2, mother, son aged 12) |
It was long, overwhelming amount of information |
I feel like they are all long when you are learning new technology…but I do not think there's a way to shorten it. (FG3, mother, daughter aged 11)
It was information overload. At the time I do not think I could have processed anything else. (FG1, mother, daughter aged 3) |
Theme 3. Preferences for care delivery and suggestions for the future | |
Prefer telehealth | At the time, I probably would have chosen in-person, but I'm appreciative it was at home because it forced me to learn on the spot. I did not have anyone else to rely on. (FG1, mother, daughter aged 3) |
Prefer in person | I love in-person visits. I'm a face-to-face person. (Int3, father, son aged 9) |
Clinic should offer choice | I think everybody's different. The parents may not be comfortable. The child may not be comfortable. I think it's just based on that statement, would you rather have hands-on assistance or would you rather us guide you through it online and if something goes sideways, you could come in. I think that's just good stewardship. (FG4, father, son aged 10) |
Note: FG, focus group; Int, Interview.