Table 4.

Key practical and ethical lessons learned – end of life and rapid autopsy research

Research at EOL has provided our participants with autonomy and ability to leave a meaningful scientific legacy

Sustained community engagement and patient/participant-centered focus is particularly critical in EOL research

Multi-disciplinary teams are key and should include paid positions for socio-behavioral scientists and members of the HIV community

Decisions regarding goals-of-care, hospice, and medical aid in dying (where applicable) must be done completely outside the study