Table 5.

Perspectives on How Lynch Syndrome Diagnosis Information Should Be Provided to Relatives Following a Patient’s Death

Key findings	Example quotes
When the information should be shared: A few months after, but within a year	“Hopefully it wouldn’t be too long after the person passed away – like it wouldn’t be over a year but within a years’ time.”
How the information should be shared: Explanatory letter and follow-up phone call with an option to meet face to face	“A letter … give them the facts … and explain why you need to come in and speak to someone.”
Who should share the information: Health professional knowledgeable about Lynch syndrome	“I would like to be informed by a professional or someone who had information that could answer some of my questions … I would like to have a voice to talk to.”