Table 1.
Quantitative results of the Researcher (R) Survey (Rs; N = 20)
| Q1. Which type of organisation do you represent? | ||||||||
| Academia | EFPIA | SME | Other | |||||
| Number (%) of Rs | 15 (75%) | 5 (25%) | 0 (0%) | 0 (0%) | ||||
| Q2. What is your position? | ||||||||
| Clinical Researcher | Non-clinical Researcher | Other | ||||||
| Number (%) of Rs | 9 (45%) | 10 (50%) | 1 (5%) | |||||
| Q3. How much experience of working with patients/public as research partners did you have before your involvement with RTCure?* | ||||||||
| No experience at all | Slight experience | Moderate experience | A good deal of experience | Extensive experience | ||||
| Number (%) of Rs | 5 (25%) | 4 (20%) | 6 (30%) | 2 (10%) | 4 (20%) | |||
| Q4. Which Work Package (WP) have you been most involved in? | ||||||||
| WP1 | WP2 | WP3 | WP4 | WP5 | WP6 | WP7 | ||
| Number (%) of Rs | 2 (10%) | 2 (10%) | 5 (25%) | 4 (20%) | 2 (10%) | 3 (15%) | 2 (10%) | |
| Q5. How much do you think that our patient/public research partners have been able to contribute to this Work Package? | ||||||||
| No contribution at all | Minor contribution | Moderate contribution | Large contribution | Extremely large contribution | ||||
| Number (%) of Rs | 3 (15%) | 4 (20%) | 5 (25%) | 7 (35%) | 1 (5%) | |||
| Q6. Which other Work Package(s) have you been involved in (if any)? | ||||||||
| WP1 | WP2 | WP3 | WP4 | WP5 | WP6 | WP7 | None | |
| Number (%) of Rs | 0 (0%) | 3 (15%) | 2 (10%) | 3 (15%) | 2 (10%) | 6 (30%) | 0 (0%) | 4 (20%) |
| Q7. How much do you think that our patient/public research partners have been able to contribute to this Work Package? | ||||||||
| No contribution at all | Minor contribution | Moderate contribution | Large contribution | Extremely large contribution | ||||
| Number (%) of Rs | 3 (15%) | 5 (25%) | 7 (35%) | 5 (25%) | 0 (0%) | |||
| Q8. What kind of impact do you think patient and public involvement (PPI) has had on RTCure overall so far?^ | ||||||||
| Extremely small impact | Small impact | Moderate impact | Large impact | Extremely large impact | ||||
| Number (%) of Rs | 0 (0%) | 9 (45%) | 2 (10%) | 9 (45%) | 0 (0%) | |||
| Q9. Have you had any experience so far of working with Patient/Public Research Partners during RTCure? | ||||||||
| Yes | No | |||||||
| Number (%) of Rs | 15 (75%) | 5 (25%) | ||||||
| Q11. Has your experience from working with PRPs in RTCure changed your views on working with PPI? | ||||||||
| Yes | No | Don’t know | ||||||
| Number (%) of Rs | 6 (30%) | 12 (60%) | 2 (10%) | |||||
| Q12. Has your experience from working with PRPs in RTCure had any effect on your research perspective/thinking? | ||||||||
| Yes | No | |||||||
| Number (%) of Rs | 12 (60%) | 8 (40%) | ||||||
EFPIA European Federation of Pharmaceutical Industries and Associations, SME Small-to-medium enterprise
*One person chose two options. ^ ‘Moderate impact’ option erroneously written as ‘no impact’ on original survey; numbers given for ‘moderate impact’ have been adjusted based one person stating in the free text they wanted to choose ‘moderate impact’ and another person ticking both ‘small impact’ and ‘large impact’
Qs 10, 13 & 14 were purely qualitative questions