Table 1.
Quality of life measures summary.
| Quality of life measure | Site-specific | Disease-specific | Multidimensional? | Number of studies | Patient or clinician | Domains |
|---|---|---|---|---|---|---|
| SF-36 | No | No | Yes | 55 | Patient | Physical functioning |
| Physical role | ||||||
| Bodily pain | ||||||
| General health | ||||||
| Vitality | ||||||
| Social functioning | ||||||
| Emotional role | ||||||
| Mental health | ||||||
| SF-12 | No | No | Yes | 1 | Patient | Mental Functioning |
| Physical Functioning | ||||||
| PANQOL | No | Yes | Yes | 24 | Patient | Anxiety |
| Facial functioning | ||||||
| General health | ||||||
| Balance | ||||||
| Hearing loss | ||||||
| Energy | ||||||
| Pain | ||||||
| GBI | No | No | Yes | 12 | Patient | Overall |
| General health | ||||||
| Physical functioning | ||||||
| Social functioning | ||||||
| DHI | No | No | Yes | 15 | Patient | Physical |
| Emotional | ||||||
| Functional | ||||||
| FaCE | No | No | Yes | 2 | Patient | Facial movement |
| Facial comfort | ||||||
| Oral function | ||||||
| Eye comfort | ||||||
| Lacrimal control | ||||||
| Social function | ||||||
| NFTI-QOL | No | Yes | Yes | 1 | Patient | Hearing |
| Dizziness and Balance | ||||||
| Facial palsy | ||||||
| Sight | ||||||
| Mobility and Walking | ||||||
| Role and Outlook on life | ||||||
| Pain | ||||||
| Anxiety and Depression | ||||||
| PROMIS-10 | No | No | Yes | 2 | Patient | Overall health |
| Pain | ||||||
| Fatigue | ||||||
| Social health | ||||||
| Mental health | ||||||
| Physical health | ||||||
| PCMIS | No | Yes | Yes | 1 | Patient | Diplopia |
| Facial sensation | ||||||
| Facial palsy | ||||||
| Hearing | ||||||
| Swallowing and speaking | ||||||
| Motor disturbance | ||||||
| Sensory disturbance | ||||||
| Consciousness and | ||||||
| communication | ||||||
| QLQ-C30 | No | Yes | Yes | 4 | Patient | Physical Role |
| Cognitive | ||||||
| Emotional | ||||||
| Social | ||||||
| Global QoL | ||||||
| GHSI | No | No | Yes | 2 | Patient | General |
| Social | ||||||
| Physical Health | ||||||
| QLQ-BN20 | No | Yes | Yes | 2 | Patient | Headaches |
| Seizures | ||||||
| Drowsiness | ||||||
| Hair loss | ||||||
| Itchy skin | ||||||
| Leg weakness | ||||||
| Bladder control | ||||||
| Future uncertainty | ||||||
| Visual disorder | ||||||
| Motor dysfunction | ||||||
| Communication deficit | ||||||
| Heidelberg SYQOL Inventory | No | No | Yes | 1 | Patient | Cranial Deficits |
| Headaches | ||||||
| Fatigue | ||||||
| APHAB | No | No | Yes | 1 | Patient | Ease of communication |
| Reverberation | ||||||
| Background noise | ||||||
| Aversiveness of sounds | ||||||
| BBS | No | No | No | 1 | Patient | Speech perception |
| Spatial hearing | ||||||
| Quality of sound | ||||||
| THI | No | No | Yes | 6 | Patient | Functional |
| Emotional | ||||||
| Catastrophic | ||||||
| HHI | No | No | Yes | 5 | Patient | Emotional |
| Social | ||||||
| MDASI-BT | No | No | Yes | 2 | Patient | Pain |
| Fatigue | ||||||
| Nausea | ||||||
| Disturbed sleep | ||||||
| Distress | ||||||
| Shortness of breath | ||||||
| Difficulty remembering | ||||||
| Lack of appetite | ||||||
| Drowsiness | ||||||
| Dry mouth | ||||||
| Sadness | ||||||
| Vomiting | ||||||
| Numbness | ||||||
| Symptom interference | ||||||
| HSQ | No | No | Yes | 2 | Patient | Health perception |
| Physical functioning | ||||||
| Physical role | ||||||
| Emotional role | ||||||
| Social functioning | ||||||
| Mental health | ||||||
| Bodily pain | ||||||
| Energy/Fatigue | ||||||
| Physical component scale | ||||||
| Mental component scale | ||||||
| IPQ-R | No | No | Yes | 2 | Patient | Timeline |
| Consequences | ||||||
| Personal control | ||||||
| Treatment control | ||||||
| Illness coherence | ||||||
| Emotional representations | ||||||
| HADS | No | No | No | 2 | Patient | Anxiety |
| Depression | ||||||
| WHOQOL-Bref | No | No | Yes | 1 | Patient | Physical health |
| Psychological | ||||||
| Social relationships | ||||||
| Environment | ||||||
| ABC | No | No | No | 1 | Patient | Activities of Daily Living |
| Motor | ||||||
| FACT-Br | No | Yes | Yes | 1 | Patient | Physical |
| Social/Family | ||||||
| Emotional | ||||||
| Functional | ||||||
| General Wellbeing | ||||||
| EQ-5D | No | No | Yes | 1 | Patient | Mobility |
| Self-Care | ||||||
| Usual Activities | ||||||
| Pain / Discomfort | ||||||
| Anxiety / Depression |