Table 2.
Study participation.
| Study | Participation (%) | Reasons for non-participation |
|---|---|---|
| Leong 2015 | 45.2 | No response (n = 482) |
| Kessel 2017 | 66.8 | No response (n = 61) |
| Inoue 2001 | 86.0 | Questionnaires could not be delivered (n = 32) |
| No response (n = 28) | ||
| Browne 2008 | 71.4 | No response (n = 28) |
| Did not meet inclusion criteria (n = 6) | ||
| Bateman 2000 | 76.0 | No response (n = 17) |
| Andersson 1997 | 90.0 | No response (n = 16) |
| Sun 2015 | 87.5 | Inaccessible (n = 3) |
| Subramaniam 2005 | 93.0 | Declined (n = 2) |
| Disability (n = 1) | ||
| Lost to follow-up (n = 1) | ||
| Blom 2020 | 75.8 | Declined (n = 11) |
| Link 2018 | 79.0 | No response (n = 30) |
| Lodder 2018 | 40.8 | No response (n = 483) |
| Incomplete Data (n = 38) | ||
| Dirven 2020 | 93.0 | No response (n = 2) |
| Sandooram 2010 | 94.2 | Lost to follow up (n = 2) |
| Scheich 2014 | 78.0 | No response (n = 26) |
| LeReste 2013 | 81.5 | Death (n = 7) |
| Kim 2015 | 75.5 | No response (n = 35) |
| Combs 2013 | 42.0 | No response (n = 114) |
| Deceased (n = 51) | ||
| Wirsching 2020 | 60.8 | Did not consent (n = 88) |
| Foreign mother tongue (n = 48) | ||
| Cognitive impairment (n = 249) | ||
| Van Leeuwen 1996 | 77.0 | Relocation (n = 14) |
| Refused to participate (n = 17) | ||
| Deceased (n = 9) | ||
| Yang 2018 | 29.0 | Declined (n = 36) |
| MacAndie 2004 | 84.0 | No response (n = 5) |
| Change of address (n = 3) | ||
| Armstrong 2010 | 87.4 | Paralysis (n = 103) |
| Timmer 2010 | 91.0 | Dementia (n = 9) |
| Brooker 2010 | 78.0 | Did not meet inclusion criteria (n = 40) |
| Pan 2012 | 92.0 | Did not meet inclusion criteria (n = 3) |
| Breivik 2012 | 97.4 | Declined (n = 5) |
| Vogel 2008 | 87.8 | Personal issues (n = 6) |
| No response (n = 4) | ||
| Hruba 2019 | 67.3 | Did not meet inclusion criteria (n = 35) |
| Foley 2017 | 87.0 | Declined (n = 10) |
| Reading difficulties (n = 1) | ||
| Emotional difficulties to survey content (n = 1) | ||
| Van Leeuwen 2013 | 76.8 | Personal problems (n = 7) |
| No response (n = 29) | ||
| Soulier 2017 | 76.0 | Living abroad (n = 14) |
| Missing contact information (n = 6) | ||
| No response (n = 289) | ||
| Tufarelli 2006 | 85.0 | No response (n = 69) |
| Baumann 2005 | 70.0 | Declined (n = 8) |
| Relocated (n = 7) | ||
| Deceased (n = 3) | ||
| Miller 2019 | 36.8 | Incomplete survey (n = 230) |