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. 2022 Oct 12;10(10):2017. doi: 10.3390/healthcare10102017
Section 1: Breast Cancer Diagnosis: Treatment and Experience
1.1 Can you tell us how much you knew about breast cancer prior to your diagnosis?
(a) What did you know about the symptoms of breast cancer?
(b) What did you know about how to diagnose breast cancer (breast screening, mammography)?
(c) Did you know how breast cancer is treated and where to go for the treatment?
1.2 Can you tell us about your experience with breast cancer?
(a) When and how did you know you have cancer?
(b) What was your first reaction when you were first diagnosed with breast cancer?
(c) What treatment did you go through since you were diagnosed with breast cancer?
(d) Did you do any breast screening before your breast cancer diagnosis? When did you do the last mammography?
Section 2: Breast cancer diagnosis and distress
2.1 Tell us about any distress that you have experienced during the process of diagnosis and treatment of cancer
(a) Emotional/psychological distress? Emotional distress during the process of treatment, change in the physical appearance
(b) Financial distress? Distress due to impact on the financial situation.
(c) Social isolation? (Relationship issues, heightened fear of rejection from partner loneliness)
(d) Anxious about cancer recurrence
Section 3: Impact of breast cancer on quality of life
3.1 How has cancer impacted your daily life and your overall quality of life?
(a) Daily activities
(b) Work (paid work)
(c) Sleep (including sleep deprivation, sleep disturbances, insomnia and so on)
(d) Cognition (memory)
(e) Fatigue
(f) Physical/Body image (body image was associated with mastectomies, breast reconstructive surgery, etc.)
(g) Sexuality (Sexual disorder, discomfort)
Section 4: Health services utilisation
4.1 Which health services are currently available to you (e.g., reproductive services, doctor’s surgery and specialist services)?
4.2 Which of these services did you utilise? Tell us your experience of using these services
4.3 What health services are not available to you (e.g., reproductive services, doctor’s surgery and specialist services)?
4.4 What women’s health services (including reproductive health) would you like to have access to improve your health?