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. 2022 Oct 14;19(20):13258. doi: 10.3390/ijerph192013258

Table 2.

Patient reported outcome measures used and rationale.

Domain. Measure Description Reason for Selection
Perceived social support MOS-SS 19 questions, inc. emotional, informational, tangible, affectionate, and interactional support Questions about perception of different types of support, including outside of the family unit, and so reflects goals of intervention.
Loneliness UCLA 3-item 3 indirect questions on loneliness, distinct from functional support and depressive symptomology Brief measure of perception of relevant negative social experiences reflecting loneliness, without using word ‘lonely’.
Depression BEDS 6 questions, based on cognitive and affective depressive symptoms Brief measure suitable for advanced illness and validated for use in palliative care.
Quality of life EQ-5D-5L 5 questions-mobility, self-care, usual activities, pain, anxiety/depression-plus visual analogue scale 5 domains commonly used in practice so familiar to participants, 5 L could be more sensitive to change than 3 L version.