Table 1.

Summary of included studies.

Author (year)Country	Type of Cancer	Study design (number of centers)	Inclusion criteria	Intervention (number of participants)	Comparator (number of participants)	Primary outcome	Length of follow up (months)
Frankland et al. (2019) (27) UK	Prostate	Service evaluation (historical control group) using validated questionnaires	Primary treatment – radical prostatectomy, radiotherapy or primary androgen deprivation therapy	PIFU (n= 293)	HFU (n= 334)	Quality of life Unmet survivorship needs	8
Jeppesen et al. (2018) (23) Denmark	Endometrial	RCT (4) using validated questionnaires	Stage 1 -grade 1/2	PIFU (n= 105)	HFU (n= 107)	Fear of cancer recurrence	36
Batehup et al. (2017) (28) UK	Colorectal	Service Evaluation. Non-randomised comparison using validated questionnaires	post curative surgery	PIFU + 3 monthly stool samples yrs1-2, colonoscopy + self-management program (n=239)	HFU + stool samples, colonoscopy (n= 124)	Quality of life	12
Kirshbaum et al., 2016) (24) UK	Breast	RCT (1) using validated questionnaires	Stage 1 or 2	PIFU + educational program (n= 56)	HFU (n= 56)	Quality of life	24
Sheppard et al. (2009) UK	Breast	RCT (1) using validated questionnaires	2 years post treatment	PIFU + annual mammogram (n= 112)	HFU + annual mammogram (n= 112)	Quality of life	18
Koinberg et al. (2004) (29) Sweden	Breast	RCT (2) using validated questionnaires	Stage 1 or 2	PIFU + annual mammogram + education (n= 133)	HFU + annual mammogram (n= 131)	Hospital anxiety and depression	60
Brown et al. (2002) (30) UK	Breast	RCT (2) using validated questionnaires and structured interviews	Stage 1	PIFU + annual mammogram (n= 30)	HFU + annual mammogram (n= 31)	Quality of life and psychological morbidity	12
Ohlsson et al. (1995) (31) Sweden	Colorectal	RCT (2)	3 months post curative surgery	PIFU + 3 monthly stool samples yrs1-2 (n= 53)	Intensive HFU + colonoscopy (n= 53)	Disease free survival	81

PIFU, patient initiated follow up; HFU, hospital follow up; RCT, randomized controlled trial.