Table 3.

Interview guide example questions

Coping strategies
What, if anything, [has helped/is helping] you manage [OR cope with] this [source of uncertainty]? What (else), if anything, [would have been/would be] helpful for managing [source of uncertainty]?	If you could give advice to another SCID parent about managing [source of uncertainty they are talking about], what would you say?
Changes in coping strategies
Have you noticed any differences in how you respond to [OR cope with] uncertainties in your journey with [Child’s name] now compared to when [he/she] was first diagnosed?	Do you feel that the ways you are managing uncertainty today are working better?