Table 2.
Summary of the characteristics of included articles
| Article summary | N | % |
|---|---|---|
| Number of patients | ||
| ≤ 100 | 136 | 56.9 |
| 101 to 500 | 73 | 30.5 |
| ≥ 501 | 30 | 12.6 |
| Age Range | ||
| Pediatric (< 18) | 23 | 9.6 |
| Adult (≥ 18) | 187 | 78.2 |
| Both | 29 | 12.1 |
| Type of QoL report | ||
| Self-reported | 226 | 94.6 |
| Proxy-reported | 4 | 1.7 |
| Both | 9 | 3.8 |
| Disease classification (ICD-11) | ||
| Neoplasms | 7 | 2.9 |
| Diseases of the blood or blood-forming organs | 4 | 1.7 |
| Diseases of the circulatory system | 60 | 25.1 |
| Diseases of the immune system | 2 | 0.8 |
| Endocrine, nutritional or metabolic diseases | 5 | 2.1 |
| Sleep–wake disorders | 1 | 0.4 |
| Diseases of the nervous system | 18 | 7.4 |
| Diseases of the visual system | 58 | 24.3 |
| Diseases of the respiratory system | 3 | 1.3 |
| Diseases of the digestive system | 58 | 24.3 |
| Diseases of the musculoskeletal system or connective tissue | 15 | 6.3 |
| Diseases of the urinary system | 1 | 0.4 |
| Developmental anomalies | 1 | 0.4 |
| Symptoms, signs, or clinical findings, not elsewhere classified | 6 | 2.5 |
| Total number of included articles | 239 | |
The sum of the percentages might not yield 100% due to numerical rounding