Table 3.
Number of discharges by RD patients, number of patients and LOS analysis for this year 2000 livebirth RD-patient cohort by Orphanet classification in decreasing order of frequency.
| Orphanet classification | Number of discharges | Number of people | Mean Total LOS | Discharges per patient | LOS (days) discharge | Median LOS (days) |
|---|---|---|---|---|---|---|
| Rare development defect during embryogenesis | 4374 | 927 | 21,300 | 4.7 | 4.9 | 1.0 |
| Rare neoplastic disease | 3633 | 121 | 7546 | 30.0 | 2.1 | 1.0 |
| Rare haematologic disease | 1605 | 104 | 2850 | 15.4 | 1.8 | 1.0 |
| Rare neurologic disease | 1317 | 322 | 6136 | 4.1 | 4.7 | 1.0 |
| Rare respiratory disease | 616 | 43 | 3320 | 14.3 | 5.4 | 2.0 |
| Rare endocrine disease | 591 | 135 | 1539 | 4.4 | 2.6 | 1.0 |
| Rare systematic or rheumatologic disease | 461 | 101 | 1336 | 4.6 | 2.9 | 1.0 |
| Rare skin disease | 437 | 97 | 695 | 4.5 | 1.6 | 1.0 |
| Rare inborn errors of metabolism | 360 | 42 | 2467 | 8.6 | 6.9 | 2.0 |
| Rare bone disease | 227 | 66 | 631 | 3.4 | 2.8 | 1.0 |
| Rare eye disease | 157 | 37 | 390 | 4.2 | 2.5 | 1.0 |
| Rare otorhinolaryngologic disease | 138 | 47 | 865 | 2.9 | 6.3 | 1.0 |
| Rare cardiac disease | 138 | 55 | 730 | 2.5 | 5.3 | 1.5 |
| Rare renal disease | 93 | 12 | 649 | 7.8 | 7.0 | 2.0 |
| Rare infectious disease | 93 | 13 | 456 | 7.2 | 4.9 | 1.0 |
| Rare gastroenterologic disease | 91 | 22 | 1055 | 4.1 | 11.6 | 3.0 |
| Rare urogenital disease | 25 | 5 | 39 | 5.0 | 1.6 | 1.0 |
| Rare hepatic disease | 14 | 6 | 56 | 2.3 | 4.0 | 3.0 |
| Rare immune disease | a | a | a | a | a | a |
| Rare intoxication | a | a | a | a | a | a |
| Rare odontologic disease | a | a | a | a | a | a |
| Rare circulatory disease | a | a | a | a | a | a |
| All discharges | 14,454 | 2164 | 52,335 | 6.7 | 3.6 | 1.0 |
aThe case numbers are less than 5 and have been excluded to avoid disclosure issues.