Table 1.
Predisposing, enabling, and need characteristics.
| Measure | Data source | Measure construction | Measures refer to CGa or CRb; assessment times: 0 or BLc, 3, 6, and 12 months | |||||
| Predisposing fixed characteristics | ||||||||
|
|
Basic | |||||||
|
|
|
Age | EHRd or survey | Years | CG, CR; 0 months (BL) | |||
|
|
|
Sex | EHR or survey | Categorical: Male or female | CG, CR; 0 months (BL) | |||
|
|
|
Race or ethnicity | EHR or survey | Categorical: White, Black, Hispanic, other | CG, CR; 0 months (BL) | |||
|
|
|
Education | Survey | Categorical: <High school, high school, some college, college graduate+ | CG; 0 months (BL) | |||
|
|
|
Prior (1-year) nonacute use | EHR or survey | Counts: Physician ambulatory visits | CR; 0 months (BL) | |||
|
|
|
Prior (1-year) acute use | EHR or survey | Counts: EDe, hospital visits or bed days | CR; 0 months (BL) | |||
|
|
AD/ADRDf specific | |||||||
|
|
|
Dementia type | EHR | Categorical: Including Alzheimer disease, Lewy Body disease, Parkinson disease, vascular, frontotemporal, and mixed | CR; 0, 3, and 6 months | |||
|
|
|
Caregiver relationship to CR | Survey | Categorical: Spouse, child, other relative, friend or other | CG, CR; 0 months | |||
|
|
|
Functional state | Survey | 14 items: Activities of Daily Living or Instrumental Activities of Daily Living [68] for CG; within HABC-Mg [66] for CR | CG, CR; 0, 3, and 6 months | |||
|
|
|
Marital status | Survey | Categorical: Single or never married, married, divorced, widowed | CG, CR; 0, 3, and 6 months | |||
|
|
|
Substance use history | Survey | Current: Yes or no; past history: yes or no | CG, CR; 0, 3, and 6 months | |||
|
|
|
Mental illness history | Survey | Yes or no: depression, schizophrenia, posttraumatic stress disorder, other | CG, CR; 0 months | |||
| Enabling time-varying effect characteristics | ||||||||
|
|
Basic | |||||||
|
|
|
Distance to hospital (ED) | Calculated | Miles | CG, CR; 0, 3, and 6 months | |||
|
|
|
Distance to usual source of care (USC) | Calculated | Miles | CG, CR; 0, 3, and 6 months | |||
|
|
|
Difference in distance ED vs USC | Calculated | Miles (USC)—distance to hospital | CG, CR; 0, 3, and 6 months | |||
|
|
|
Change in PCPh | Survey | Yes or no | CR; 0, 3, and 6 months | |||
|
|
|
Insurance | EHR | Yes or no | CR; 0, 3, and 6 months | |||
|
|
|
Current nonacute use | EHR or survey | Counts: physician ambulatory visits, in-home supportive services | CR; 0, 3, 6, and 12 months | |||
|
|
|
Current acute use | EHR or survey | Counts: physician ambulatory visits, ED, hospital visits or bed days | CR; 0, 3, 6, and 12 months | |||
|
|
AD/ADRD specific | |||||||
|
|
|
Mode of transportation | Survey | Categorical: personal car, taxi, train, bus, walk | CR; 0, 3, and 6 months | |||
|
|
|
Caregiver living arrangement | Survey | Categorical: Live with subject, close proximity (miles), other | CG; 0, 3, and 6 months | |||
|
|
|
Caregiver stress | Survey | Stress thermometer (scale), 5-level visual analog scale [57] | CG; 0, 3, 6, and 12 months | |||
|
|
|
Dementia symptoms | Survey | HABC-M [66] (measuring severity of CR symptoms) | CR; 0, 3, and 6 months | |||
| Need characteristics | ||||||||
|
|
Basic | |||||||
|
|
|
Acute illness | Survey | Counts: episodes by type (classification by study physicians) | CR; 0, 3, and 6 months | |||
|
|
|
Falls, other injuries | Survey | Counts: episodes by type (classification by study physicians) | CR; 0, 3, and 6 months | |||
|
|
|
Nonacute illness | Survey | Counts: episodes by type (classification by study physicians) | CR; 0, 3, and 6 months | |||
|
|
|
Medication need for refill | Survey | Categorical: Yes or no | CR; 0, 3, and 6 months | |||
|
|
|
Clinical comorbid conditions | EHR | Charlson comorbidity index [69] | CR; 0, 3, and 6 months | |||
|
|
|
Satisfaction | Survey | Scale: 0-10 (worst possible care to best possible care [70]) | CG; 0, 3, and 6 months | |||
|
|
AD/ADRD specific | |||||||
|
|
|
Functional state | Survey | 14 items: Activities of Daily Living or Instrumental Activities of Daily Living for CG [68]; within HABC-M [66] for CR | CG, CR; 0, 3, and 6 months | |||
|
|
|
Caregiver activation | Survey | MYLOHi Instrument [71] | CR; 0, 3, 6, and 12 months | |||
|
|
|
Social support | Survey | MOSj Abbreviated Social Support (4-item; 5-point Likert scale [64,72]) | CG; 0, 3, and 6 months | |||
|
|
|
Other root causes | EHR | Application of post hoc adjudication of root causes for ED use | CR; 0, 3, and 6 months | |||
aCG: caregiver.
bCR: care recipient.
cBL: baseline.
dEHR: electronic health record.
eED: emergency department.
fAD/ADRD: Alzheimer disease/Alzheimer Disease–Related Disorders.
gHABC-M: Healthy Aging Brain Care Monitor.
hPCP: primary care physician.
iMYLOH: Managing Your Loved One’s Health.
jMOS: Medical Outcomes Study.