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. 2022 Oct 20;11(10):e36607. doi: 10.2196/36607

Table 1.

Predisposing, enabling, and need characteristics.

Measure Data source Measure construction Measures refer to CGa or CRb; assessment times: 0 or BLc, 3, 6, and 12 months
Predisposing fixed characteristics

Basic


Age EHRd or survey Years CG, CR; 0 months (BL)


Sex EHR or survey Categorical: Male or female CG, CR; 0 months (BL)


Race or ethnicity EHR or survey Categorical: White, Black, Hispanic, other CG, CR; 0 months (BL)


Education Survey Categorical: <High school, high school, some college, college graduate+ CG; 0 months (BL)


Prior (1-year) nonacute use EHR or survey Counts: Physician ambulatory visits CR; 0 months (BL)


Prior (1-year) acute use EHR or survey Counts: EDe, hospital visits or bed days CR; 0 months (BL)

AD/ADRDf specific


Dementia type EHR Categorical: Including Alzheimer disease, Lewy Body disease, Parkinson disease, vascular, frontotemporal, and mixed CR; 0, 3, and 6 months


Caregiver relationship to CR Survey Categorical: Spouse, child, other relative, friend or other CG, CR; 0 months


Functional state Survey 14 items: Activities of Daily Living or Instrumental Activities of Daily Living [68] for CG; within HABC-Mg [66] for CR CG, CR; 0, 3, and 6 months


Marital status Survey Categorical: Single or never married, married, divorced, widowed CG, CR; 0, 3, and 6 months


Substance use history Survey Current: Yes or no; past history: yes or no CG, CR; 0, 3, and 6 months


Mental illness history Survey Yes or no: depression, schizophrenia, posttraumatic stress disorder, other CG, CR; 0 months
Enabling time-varying effect characteristics

Basic


Distance to hospital (ED) Calculated Miles CG, CR; 0, 3, and 6 months


Distance to usual source of care (USC) Calculated Miles CG, CR; 0, 3, and 6 months


Difference in distance ED vs USC Calculated Miles (USC)—distance to hospital CG, CR; 0, 3, and 6 months


Change in PCPh Survey Yes or no CR; 0, 3, and 6 months


Insurance EHR Yes or no CR; 0, 3, and 6 months


Current nonacute use EHR or survey Counts: physician ambulatory visits, in-home supportive services CR; 0, 3, 6, and 12 months


Current acute use EHR or survey Counts: physician ambulatory visits, ED, hospital visits or bed days CR; 0, 3, 6, and 12 months

AD/ADRD specific


Mode of transportation Survey Categorical: personal car, taxi, train, bus, walk CR; 0, 3, and 6 months


Caregiver living arrangement Survey Categorical: Live with subject, close proximity (miles), other CG; 0, 3, and 6 months


Caregiver stress Survey Stress thermometer (scale), 5-level visual analog scale [57] CG; 0, 3, 6, and 12 months


Dementia symptoms Survey HABC-M [66] (measuring severity of CR symptoms) CR; 0, 3, and 6 months
Need characteristics

Basic


Acute illness Survey Counts: episodes by type (classification by study physicians) CR; 0, 3, and 6 months


Falls, other injuries Survey Counts: episodes by type (classification by study physicians) CR; 0, 3, and 6 months


Nonacute illness Survey Counts: episodes by type (classification by study physicians) CR; 0, 3, and 6 months


Medication need for refill Survey Categorical: Yes or no CR; 0, 3, and 6 months


Clinical comorbid conditions EHR Charlson comorbidity index [69] CR; 0, 3, and 6 months


Satisfaction Survey Scale: 0-10 (worst possible care to best possible care [70]) CG; 0, 3, and 6 months

AD/ADRD specific


Functional state Survey 14 items: Activities of Daily Living or Instrumental Activities of Daily Living for CG [68]; within HABC-M [66] for CR CG, CR; 0, 3, and 6 months


Caregiver activation Survey MYLOHi Instrument [71] CR; 0, 3, 6, and 12 months


Social support Survey MOSj Abbreviated Social Support (4-item; 5-point Likert scale [64,72]) CG; 0, 3, and 6 months


Other root causes EHR Application of post hoc adjudication of root causes for ED use CR; 0, 3, and 6 months

aCG: caregiver.

bCR: care recipient.

cBL: baseline.

dEHR: electronic health record.

eED: emergency department.

fAD/ADRD: Alzheimer disease/Alzheimer Disease–Related Disorders.

gHABC-M: Healthy Aging Brain Care Monitor.

hPCP: primary care physician.

iMYLOH: Managing Your Loved One’s Health.

jMOS: Medical Outcomes Study.