Table 2.

Primary and secondary outcomes

Outcome	Specific measure	Type; range	Source	Timing
Receipt of palliative care	Any palliative care consult within 12 months of enrolment (primary outcome)	Binary; 0/1	Chart review, patient or surrogate report	Enrolment, every 3 months up to 12 months on study
	Any palliative care received	Binary; 0/1	Chart review, patient or surrogate report	Enrolment, every 3 months up to 2 years on study
	New documentation of advance care planning	Binary; 0/1	Chart review	Enrolment to 2 years on study
	Hospice enrolment	Binary; 0/1	Chart review	Enrolment to 2 years on study
Intensity of treatment	ICU admission within 30 days of death	Binary; 0/1	Chart review, surrogate report	Date of death minus 30 days
	ER visit, ICU or hospitalisation within 30 days of death; surgical procedures within 30 days of death; Intubation; CPR; days in hospice	Binary composite; 0/1 count	Chart review, surrogate report	Date of death minus 30 days
Health-related quality of life	Functional Assessment of Chronic Illness Therapy-Palliative Care Version 4	Continuous; 0–184	Patient	Enrolment, every 3 months up to 2 years
Quality of communication (QOC)	QOC	Continuous; 0–10	Patient	Within 48 hours after enrolment
Dialysis	Initiation of dialysis; withdrawal of dialysis	Binary; 0/1	Chart review, patient or surrogate report	Enrolment to 2 years on study
Death	Patient death	Time to event	Chart review, surrogate report	Date of death
Bereavement	Quality of Dying and Death (QODD) survey	Continuous; 0–100	Caregiver	30 days to 3 months after patient death
Health-related quality of life	Cambridge Palliative Audit Schedule (Caregiver impression of QOL)	Continuous; 0–100	Caregiver	Enrolment and every 3 months up to 2 years
QOC	QOC Questionnaire (Family member version)	Continuous; 0–10	Caregiver	Within 48 hours after enrolment

QOL, quality of life.