Table 1.
Description of Swiss Multiple Sclerosis Registry online participants and nonparticipants.
| Characteristica | Nonparticipants (did not complete the COVID-19 survey; N=1149) | Participants (completed the COVID-19 survey; N=885) | |
| Age |
|
|
|
|
|
Value (years), median (IQR) | 47.0 (38-56) | 48.0 (39-56) |
|
|
Missing information, n (%) | 50 (4.4) | 25 (2.8) |
| Gender, n (%) |
|
|
|
|
|
Female | 834 (72.6) | 622 (70.3) |
|
|
Male | 315 (27.4) | 262 (29.6) |
|
|
Missing information | 0 (0) | 1 (0.1) |
| Language, n (%) |
|
|
|
|
|
German | 903 (78.6) | 695 (78.5) |
|
|
French | 206 (17.9) | 153 (17.3) |
|
|
Italian | 40 (3.5) | 37 (4.2) |
| MSb type, n (%) |
|
|
|
|
|
CISc | 31 (2.7) | 16 (1.8) |
|
|
PPMSd | 99 (8.6) | 94 (10.6) |
|
|
RRMSe | 769 (66.9) | 601 (67.9) |
|
|
SPMSf | 134 (11.7) | 142 (16.0) |
|
|
Transition between 2 MS types or unspecified | 30 (2.6) | 27 (3.1) |
|
|
Missing information | 86 (7.5) | 5 (0.6) |
| Disease-modifying MS medication (immunotherapy), n (%) |
|
||
|
|
Yes | 285 (24.8) | 586 (66.2) |
|
|
No | 188 (16.4) | 222 (25.1) |
|
|
Missing information | 676 (58.8) | 77 (8.7) |
| Disease duration |
|
|
|
|
|
Value (years), median (IQR) | 10.0 (5-18) | 10.0 (4-17) |
|
|
Missing information, n (%) | 104 (9.1) | 34 (3.8) |
| VASg (health-related QLSh) |
|
|
|
|
|
Value, median (IQR) | 77 (54-90) | 80 (60-90) |
|
|
Missing information | 185 (16.1) | 121 (13.7) |
| EQ-5Di |
|
|
|
|
|
Value, median (IQR) | 68.3 (49-88) | 69.1 (51-91) |
|
|
Missing information | 185 (16.1) | 121 (13.7) |
aPercentages were rounded and may thus not add up to 100%.
bMS: multiple sclerosis.
cCIS: clinically isolated syndrome.
dPPMS: primary progressive MS.
eRRMS: relapsing-remitting MS.
fSPMS: secondary progressive MS.
gVAS: visual analog scale.
hQLS: quality of life scale.
iEQ-5D: EuroQol 5-dimension scale.