Table A1.
Characteristics of AYA survivors with and without the item on dissatisfaction with scar.
| Population Characteristics | With Item on Scar 1 | Without Item on Scar 2 | |||||||
|---|---|---|---|---|---|---|---|---|---|
| with a Negative Body Image |
without a Negative Body Image |
with a Negative Body Image |
without a Negative Body Image |
||||||
| n = 541 | n = 3194 | n = 548 | n = 3187 | ||||||
| Sociodemographic characteristics | n | % | n | % | n | % | n | % | |
| Age at questionnaire—Mean (SD) | 44.2 (7.3) | 44.6 (7.5) | 44.4 (7.3) | 44.5 (7.5) | |||||
| Gender | Male | 94 | 6.5 | 1362 | 93.5 | 93 | 6.4 | 1363 | 93.6 |
| Female | 447 | 19.6 | 1832 | 80.4 | 455 | 20.0 | 1824 | 80.0 | |
| Partner (yes) | 395 | 12.7 | 2710 | 87.3 | 400 | 12.9 | 2705 | 87.1 | |
| Level of education | Low | 6 | 25.0 | 18 | 75.0 | 6 | 25.0 | 18 | 75.0 |
| Intermediate | 277 | 17.3 | 1322 | 82.7 | 271 | 16.9 | 1328 | 83.1 | |
| High | 257 | 12.2 | 1847 | 87.8 | 270 | 12.8 | 1834 | 87.2 | |
| Clinical characteristics | |||||||||
| Age at diagnosis—Mean (SD) | 31.9 (5.8) | 31.5 (5.9) | 32.1 (5.8) | 31.5 (5.9) | |||||
| Type of Cancer | Melanoma | 18 | 7.0 | 240 | 93.0 | 20 | 7.8 | 238 | 92.2 |
| Head and neck | 12 | 10.4 | 103 | 89.6 | 10 | 8.7 | 105 | 91.3 | |
| Colon and rectal | 8 | 10.5 | 68 | 89.5 | 7 | 9.2 | 69 | 90.8 | |
| Digestive tract other 3 | 6 | 20.0 | 24 | 80.0 | 6 | 20.0 | 24 | 80.0 | |
| Breast | 191 | 21.6 | 694 | 78.4 | 191 | 21.6 | 694 | 78.4 | |
| Female genitalia | 92 | 22.6 | 315 | 77.4 | 94 | 23.1 | 313 | 76.9 | |
| Thyroid gland | 26 | 11.4 | 202 | 88.6 | 28 | 12.3 | 200 | 87.7 | |
| Central nervous system | 22 | 15.5 | 120 | 84.5 | 21 | 14.8 | 121 | 85.2 | |
| Bone and soft tissue sarcoma | 20 | 12.1 | 145 | 87.9 | 19 | 11.5 | 146 | 88.5 | |
| Germ cell tumor | 38 | 5.8 | 615 | 94.2 | 37 | 5.7 | 616 | 94.3 | |
| Lymphoid hematological malignancies | 76 | 13.7 | 479 | 86.3 | 82 | 14.8 | 473 | 85.2 | |
| Myeloid hematological malignancies | 21 | 15.0 | 119 | 85.0 | 23 | 16.4 | 117 | 85.2 | |
| Other 4 | 11 | 13.6 | 70 | 86.4 | 10 | 12.3 | 71 | 87.7 | |
| Tumor stage | I | 190 | 11.9 | 1405 | 88.1 | 194 | 12.2 | 1401 | 87.8 |
| II | 174 | 17.6 | 817 | 82.4 | 182 | 18.4 | 809 | 81.6 | |
| III | 87 | 16.3 | 448 | 83.7 | 81 | 15.1 | 454 | 84.9 | |
| IV | 28 | 16.4 | 143 | 83.6 | 29 | 17.0 | 142 | 83.0 | |
| Unknown | 62 | 14.0 | 381 | 86.0 | 62 | 14.0 | 381 | 86.0 | |
| Treatments 5 | Surgery organ (yes) | 368 | 14.8 | 2115 | 85.2 | 367 | 14.8 | 2116 | 85.2 |
| Surgery local (yes) | 69 | 12.8 | 468 | 87.2 | 71 | 13.2 | 466 | 86.8 | |
| Chemotherapy (yes) | 342 | 16.3 | 1762 | 83.7 | 348 | 16.5 | 1756 | 83.5 | |
| Radiotherapy (yes) 6 | 299 | 16.8 | 1480 | 83.2 | 306 | 17.2 | 1473 | 82.8 | |
| Hormone therapy (yes) | 113 | 24.8 | 342 | 75.2 | 113 | 24.8 | 342 | 75.2 | |
| Targeted therapy (yes) | 53 | 18.3 | 236 | 81.7 | 53 | 18.3 | 236 | 81.7 | |
| Stem cell transplantation (yes) | 15 | 11.1 | 120 | 88.9 | 15 | 11.1 | 120 | 88.9 | |
| Time since diagnosis—Mean (SD) | 11.8 (4.5) | 12.6 (4.5) | 11.7 (4.5) | 12.6 (4.5) | |||||
| <10 years | 223 | 17.5 | 1051 | 82.5 | 223 | 17.5 | 1051 | 82.5 | |
| 10–15 years | 171 | 13.1 | 1136 | 86.9 | 178 | 13.6 | 1129 | 86.4 | |
| >15 years | 147 | 12.7 | 1007 | 87.3 | 147 | 12.7 | 1007 | 87.3 | |
| Physical activity | Time in hours/week—Mean (SD) | 30.1 (26.3) | 27.5 (24.8) | 30.5 (26.6) | 27.5 (24.8) | ||||
| In MET hours/week—Mean (SD) | 114.1 (96.5) | 107.6 (91.4) | 115.4 (97.4) | 107.4 (91.2) | |||||
| BMI—Mean (SD) | 26.9 (5.9) | 24.9 (4.0) | 26.9 (6.0) | 24.9 (4.0) | |||||
| Underweight | 11 | 19.0 | 47 | 81.0 | 11 | 19.0 | 47 | 81.0 | |
| Normal weight | 224 | 11.2 | 1777 | 88.8 | 227 | 11.3 | 1774 | 88.7 | |
| Overweight | 167 | 13.7 | 1050 | 86.3 | 170 | 14.0 | 1047 | 86.0 | |
| Obesity | 136 | 31.3 | 299 | 68.7 | 137 | 31.5 | 298 | 68.5 | |
| Psychosocial characteristics | |||||||||
| Coping style | Adaptive—Mean (SD) | 30.0 (7.1) | 29.1 (7.5) | 30.0 (7.2) | 29.1 (7.5) | ||||
| Maladaptive—Mean (SD) | 15.7 (4.6) | 12.8 (3.5) | 15.7 (4.5) | 12.7 (3.5) | |||||
| HRQoL | Physical functioning—Mean (SD) | 80.5 (18.8) | 93.3 (12.1) | 80.4 (19.1) | 93.4 (12.0) | ||||
| Role functioning—Mean (SD) | 59.7 (32.1) | 87.2 (21.7) | 59.6 (32.6) | 87.3 (21.5) | |||||
| Emotional functioning– Mean (SD) | 57.9 (24.1) | 83.1 (17.5) | 57.2 (24.0) | 83.3 (17.3) | |||||
| Cognitive functioning—Mean (SD) | 57.7 (28.5) | 81.3 (21.9) | 57.2 (28.1) | 81.5 (21.9) | |||||
| Social functioning—Mean (SD) | 66.3 (31.1) | 91.6 (17.7) | 65.8 (31.0) | 91.7 (17.5) | |||||
| Global health status—Mean (SD) | 59.2 (19.8) | 77.9 (15.6) | 59.0 (19.7) | 78.0 (15.5) | |||||
| Sexual attractiveness (yes) | 497 | 18.6 | 2203 | 81.4 | 501 | 18.6 | 2199 | 81.4 | |
1 Descriptive statistics on body image when the item on dissatisfaction with scar is included. 2 Descriptive statistics on body image when the item on dissatisfaction with scar is left out. 3 Digestive tract and other includes the esophagus, stomach, and small intestine. 4 Other includes respiratory, male genitalia (penis, prostate), urinary tract, tumor with other localizations, endocrine glands, eye, neuroblastoma, paraganglioma. 5 The treatments are received at primary diagnosis. 6 Radiotherapy includes radiotherapy for primary tumor and metastases at primary diagnosis. n = number of AYA survivors, Mean (SD) = mean and standard deviation.