Table 1:
Questions asked on PAC member survey
| No. | Question | Domain | Source |
|---|---|---|---|
| 1 | Describe why we wanted your feedback for CHARM. | Understanding of PAC task | CHARM |
| 2 | How satisfied were you with your experience with the PAC? | Patient empowerment | Esmail et al |
| 3 | What went well? | Advice for improvement | CHARM |
| 4 | What could we have done better? | Advice for improvement | CHARM |
| 5 | What were some surprises? | Advice for improvement | CHARM |
| 6 | Did the PAC represent the diversity of Kaiser Permanente Northwest/DH? a | Partnership and trust | PCORI |
| 7 | What do you think of the number of group meetings? a | Context: Time allocation Process: Timing |
Esmail et al |
| 8 | What do you think of the number of phone interviews? | Context: Time allocation Process: Timing |
Esmail et al |
| 9 | What do you think of the number of times we reached out to you? a | Context: Time allocation Process: Timing |
Esmail et al |
| 10 | What could we do to make it easier to review materials? | Advice for improvement | CHARM |
| 11 | What could we do to make it easier to participate in phone calls? | Advice for improvement | CHARM |
| 12 | What could we do to improve payment for your time? | Advice for improvement | CHARM |
| 13 | I was involved in deciding how and how often to work with team. | Reciprocal relationships | PCORI |
| 14 | I was paid in a fair way. | Partnership and trust | PCORI |
| 15 | It was easy to do phone interviews. | Partnership and trust | PCORI |
| 16 | It was easy to come to group meetings. | Partnership and trust | PCORI |
| 17 | I had good understanding of PAC work when I agreed. | Partnership and trust | PCORI |
| 18 | What I was asked to do was reasonable and thoughtful. | Partnership and trust | PORI |
| 19 | CHARM showed commitment to diversity. | Partnership and trust | PCORI |
| 20 | CHARM showed commitment to respecting my cultural background. | Partnership and trust | PCORI |
| 21 | CHARM helped me understand the research process. | Co-learn | PCORI |
| 22 | CHARM valued my opinions. | Co-learn | PCORI |
| 23 | In phone interviews, I got to share my opinions. | Co-learn | PCORI |
| 24 | In group meetings, I got to share my opinions. | Co-learn | PCORI |
| 25 | I felt included in the decisions in CHARM. | Transparency | PCORI |
| 26 | I got the information I needed to understand and give feedback. | Transparency | PCORI |
| 27 | The CHARM team was committed to open and honest communication. | Transparency | PCORI |
| 28 | CHARM used feedback from the PAC. | Co-learn | PORI |
| 29 | The PAC made CHARM more relevant to diverse patients. | Partnership and trust | PCORI |
| 30 | How did the PAC change your opinions about research? | Patient empowerment | Esmail et al |
| 31 | I would recommend to a friend to participate in research. | Democracy | Esmail et al |
| 32 | What have you learned by working in the PAC? | Patient empowerment | Esmail et al |
| 33 | Future work in the PAC? | Democracy | Esmail et al |
| 34 | Other feedback? | Advice for improvement | CHARM |
a
Indicates questions asked only to members of the English-language PAC. All other questions were asked to members of both PACS.
CHARM, Cancer Health Assessments Reaching Man; PAC, Patient Advisory Committee; PCORI, Patient-Centered Outcomes Research Institute.