Table 3:
Survey responses: assessing reciprocal relationships and co-learning
| Survey Questions and Responses | ENG (N) | SPAN (N) | Example Comment |
|---|---|---|---|
| I Was Involved in Deciding How and How Often to Work with Research Team | |||
| Strongly agree | 1 | 2 | “I wasn’t the one deciding when we talked. You guys set the times.” (S) |
| Agree | 2 | 5 | |
| Disagree | 4 | 2 | |
| In telephone interviews, I got to share my opinions about study materials. a | |||
| Strongly agree | 3 | 2 | |
| Agree | 4 | 7 | |
| In group meetings, I got to share my opinions about study materials | |||
| Strongly agree | 4 | n/a | |
| Agree | 3 | ||
| The study team used feedback from the PAC. a | |||
| Strongly agree | 3 | 2 | “The study already had materials that were almost finished, but they took our opinion into account.” (S) |
| Agree | 4 | 6 | |
| Neutral | 1 | “I don’t know if they changed materials based on my opinion.” (S) | |
| The study team helped me to understand the research process. | |||
| Strongly agree | 3 | 3 | “I never thought about genetics before, now I know that cousins are not considered close relatives in terms of illnesses.” (S) |
| Agree | 4 | 5 | |
| Neutral | 1 | ||
| The study team valued my opinion. a | |||
| Strongly agree | 6 | 5 | |
| Agree | 1 | 4 |
a
Indicates questions asked only to members of the English-language PAC. All other questions were asked to members of both PACS.
PAC, Patient Advisory Committee.