Table 2.

Characteristics of diagnosis delivery

	N (%)
Delivered the diagnosis (n = 60)
Family member	9 (15.0)
Mother	5 (8.3)
Father	1 (1.7)
Both parents	2 (3.3)
Aunt	1 (1.7)
Healthcare provider	49 (81.7)
Endocrinology	10 (16.7)
Urology	5 (8.3)
Rheumatology	1 (1.7)
Genetics	1 (1.7)
Pediatrics	1 (1.7)
Family medicine	1 (1.7)
Specialty not provided	30 (50.0)
Other	2 (3.3)
Age at diagnosis (n = 61)
Early childhood (0–6 yrs)	1 (1.6)
Middle/late childhood (7–12 yrs)	5 (8.2)
Adolescence (13–17 yrs)	9 (14.8)
Early adulthood (18–25 yrs)	10 (16.4)
Adulthood
25–35	18 (29.5)
36–45	12 (19.7)
46–55	4 (6.6)
56 +	2 (3.3)
Time since diagnosis (n = 55)
One year or less	10 (18.2)
2–5 yrs	5 (9.1)
5–10 yrs	8 (14.5)
11–20 yrs	9 (16.4)
21–30 yrs	13 (23.6)
31–40	5 (9.1)
41 +	5 (9.1)