Table 3:
Educational Opportunities Relevant to Pediatric Palliative Care
| In-Person Training | ||
| Title | Website | Description |
| Education in Palliative and End-of-Life Care Program (EPEC) | https://www.bioethics.northwestern.edu/programs/epec/curricula/pediatrics.html | An annual offering of 23 core and 2 elective topics in pain and symptom management in pediatric palliative care taught as a combination of distance learning modules and in-person conference sessions. |
| End-of-Life Nursing Education Consortium Pediatric Palliative Care Train-the-Trainer (ELNEC-PPC) | https://advancingexpertcare.org/elnec | Train-the-trainer format pediatric palliative care in-person curriculum for nurses. |
| Palliative Care Leadership Centers | https://www.capc.org/palliative-care-leadership-centers/ | A national initiative of the Center to Advance Palliative Care (CAPC) for year-long palliative care team mentoring with in-person visits, webinars, and virtual office hours. |
| Program in Palliative Care Education and Practice (PCEP) Pediatric Track | http://www.hms.harvard.edu/pallcare/PCEP/PCEP.htm | Week-long, in-person learning opportunities for clinician educators who wish to become expert in the practice and teaching of comprehensive pediatric palliative care. |
| Online Learning | ||
| Title | Website | Description |
| Association for Children with Life-Threatening or Terminal Conditions and Their Families (ACT) Professional Resources | http://www.togetherforshortlives.org.uk/professionals/resources | Downloadable symptom control guidelines, palliative care commissioning reports, and patient education pages. |
| The California State University Institute for Palliative Care | https://csupalliativecare.org/programs/pediatrics/ | Curriculum for preparing palliative care professionals to care for pediatric-age patients (adult to pediatric education prep). |
| Center to Advance Palliative Care (CAPC) | https://www.capc.org/training/ | Online palliative modules to include programmatic development; team education; etc. |
| Certified Hospice and Palliative Pediatric Nurse Review Course | https://advancingexpertcare.org/ItemDetail?iProductCode=OC615&Category=COURSE&WebsiteKey=b1bae5a7-e24a-4d4c-a697-2303ec0b2a8d | Online review course includes nine modules designed to assist with preparation for the certification exam. Topics include life-threatening conditions in children, pain and symptom management, bereavement, professional issues, and more. |
| Courageous Parents Network | https://courageousparentsnetwork.org/ | Collection of family-centric interactive modules thematically searchable; provider portal contains meaningful topical education expertly prepared with patient- and family-centric focus. |
| International Children’s Palliative Care Network (ICPCN) E-Learning Programme | https://www.elearnicpcn.org/ | Online courses on pain assessment and management in children, childhood development, communicating with children, and pediatric grief and bereavement. |
| National Hospice and Palliative Care Organization (NHPCO) Pediatric Palliative Care Webinar Series | http://ppcwebinars.org/ | Monthly webinar series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children. |
| NHPCO Concurrent Care for Children Implementation Toolkit | https://www.nhpco.org/wp-content/uploads/2019/06/CCCR_Toolkit.pdf | Toolkit that includes information about implementing section 2302 or expanding PPC services. |
| National Institute of Nursing Research Palliative Care for Children Palliative Care: Conversations Matter | https://www.ninr.nih.gov/newsandinformation/conversationsmatter#.VY6-pUay4nJ | Tools and resources to help clinicians discuss palliative care with pediatric patients and their families. |
| Palliative Care Online Journal Club | http://journalclub.pallcare.info/index.php? | Filtered and organized articles on palliative care for current, convenient browsing. |
| Stanford Palliative Care Training Portal | http://palliative.stanford.edu/ | Training portal on an array of topics from opioid conversion, dyspnea, clinical prognostication, and care transitions. |
| University of Washington Certificate in Palliative Care | https://www.pce.uw.edu/certificates/palliative-care | Three-course graduate certificate program, which provides the foundational skills for delivering integrated, person-centered palliative care using a team-based approach. |
| Vision of Hope | http://www.bioethicsinstitute.org/research/projects-2/hope | Disease-specific modules which integrate palliative care into pediatric chronic disease (include sickle cell and muscular dystrophy). |
| Vital Talk | http://vitaltalk.org | Learning modules with pearls and pitfall examples to foster medical professional’s comfort in discussing difficult topics with patients. |