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. 2022 Nov 24;8:63. doi: 10.1186/s40900-022-00399-x

Table 5.

STUDY DISSEMENINATION: Method of engagement and study activities by stakeholder type

Stakeholder Method of engagement Study activity Specific examples
Patients with asthma
Patient/Stakeholder Advisory board (HIITBAC) Patient education On “World Asthma Day” hosted a town hall to disseminate preliminary study results, conducted a broad discussion of asthma, and delivered list of specific action to City Council on how to make Houston more lung health through interviews with local TV and radio stations (HIITBAC)
Caregivers of patients with asthma
Parent advisory council (BEAMS) Future research

Developed parent advisory council to enhance subsequent research and programmatic initiatives BEAMS

Shared insights with other research teams considering similar engagement strategies to increase patient centered approaches

Advocacy organizations
Multi-disciplinary stakeholder committees and meetings with the GNYHA (SAMBA) Implementation

Created toolkit and implementation guide for organizations adopting and implementing self-management support program

Guidance regarding implementation and sustainability of programs

Increasing appeal of program implementation to other health care systems

Health care organizations

Meetings with representatives from NYS and city DOH

Representatives from FQHC

Implementation

Implementation

Connected research team to health plans, hospitals, academic institutions, professional organizations, community coalitions (SAMBA)

Ensured sustainability of intervention by providing ongoing training and support, institutionalizing asthma care plan (asthma education by CHWs), and implementing a quality assurance monitoring system (Respira Sano)

Community members

Community health workers

Multidisciplinary stakeholder group (SAMBA)

Implementation

Contextualization of results

Participated in statewide assessment of asthma home visiting programs in partnership with California Department of Public Health (Respira Sano)

Redeveloped messaging frames for various local and national audiences

Served as community spokespersons to share the study, findings, and broader implications for underrepresented persons with asthma

Clinicians
National advisory core group (BEAMS) Contextualization of results Helped contextualize the study and inform members of the target community about the degree to which study was shaped by patients to hopefully increase acceptance of study findings

Greater New York Hospital Association (GNYHA), New York state (NYS), Department of Health (DOH); Federally Qualified Health Center (FQHC)