Table 6.
Challenges | Solutions |
---|---|
Recruiting and retaining stakeholders | |
Identifying stakeholder partners Turnover of stakeholder members on the advisory board |
Word of mouth Assistance from community leaders or organizations to recruit stakeholders Use of existing infrastructure for community engagement Recommendation by current stakeholders to replace stakeholders who have left |
Maintaining enthusiasm and participation | |
Varying levels of enthusiasm in engagement activities Competing priorities among stakeholder members Deviation of the discussions beyond the scope of the project Lack of participation Difficulty in finding common location Inconsistent attendance due to busy schedule, or patient partner's health |
Define expectations upfront Set clear purpose and value for each meeting Have experienced facilitator lead the advisory board meetings To increase youth members’ participation, ask their input first before adult members Provide meals and honoraria at meetings Send meeting minutes, project updates, made study materials accessible to stakeholders via Dropbox Conduct meetings in Spanish Start and end meeting on time Allow remote options for attendance (phone, video conference) |
Maintaining mutual partnership | |
Ensure that stakeholder input is reflected and had true influence in the project Gain mutual benefit from collaboration |
Absolute transparency with the stakeholders to show that their work leads to measurable change Invite advisory board member to the research team Provide brief presentations on asthma education relevant to stakeholders and their families |