Table 1.

Questionnaire items and domains assessed

Items	Domain assessed
1. I have taken an active role in my family member’s care	Perception of current engagement; active role in care
2. I could visit my family member as much as I wanted	FE domain: family presence
3. I stayed in the room during procedures or treatments	FE domain: family presence
4. I was able to talk regularly with the treating doctor about my family member’s condition and treatment	FE domain: communication/education
5. I discussed my family member’s treatment goals with the treating doctor	FE domain: communication/education
6. I was involved in decision making with the healthcare team	FE domain: decision-making
7. I provided direct care to my family member (helping with hygiene, dressing, mobility exercises, feeding, etc.)	FE domain: direct care
8. I was encouraged by the doctor or nurse to increase my involvement in my family member’s care	Perception of current engagement practices: health system
9. I was treated with dignity and respect by the healthcare team	FCC domain: dignity and respect
10. I feel that I am a partner in care with the healthcare team	FCC domain: partnership
11. I feel that my physical healthcare needs have been addressed by the healthcare team	FE domain: family needs
12. I feel that my mental or emotional healthcare needs have been addressed by the healthcare team	FE domain: family needs

FCC, family-centred care; FE, family engagement.