Table 1.

Sample characteristics and descriptives by caregiving condition, M (SD) or n (%) (N = 214).

	Typically Developing (n = 62)	Inherited Metabolic Conditions (n = 130)	Undiagnosed Diseases (n = 22)	Total (N = 214)
Participant Age	40.7 (±8.09)	40.7 (±8.89)	35.9 (±6.14)	40.2 (±8.51)
Care Recipient Age	7.73 (±4.18)	8.12 (±5.64)	5.55 (±3.02)	7.74 (±5.07)
Participant female	38 (61.3%)	83 (63.8%)	13 (59.1%)	134 (62.6%)
Care Recipient female	36 (58.1%)	44 (33.8%)	8 (36.4%)	88 (41.1%)
Education
Less than HS	0 (0%)	0 (0%)	2 (9.1%)	2 (1.4%)
HS Diploma/GED	4 (6.4%)	16 (12.3%)	1 (4.5%)	21 (9.8%)
Some College	10 (16.1%)	34 (26.1%)	6 (27.2%)	50 (23.4%)
Bachelor’s Degree	18 (29.0%)	51 (39.2%)	8 (36.4%)	77 (36.0%)
Post-Graduate Degree	29 (46.8%)	25 (19.2%)	5 (22.7%)	59 (27.6%)
Married / Cohabitating	48 (77.4%)	115 (88.5%)	20 (90.9%)	183 (85.5%)
Race
American Indian / Alaska Native	0 (0%)	1 (0.8%)	0 (0%)	1 (0.5%)
Asian	9 (14.5%)	4 (3.1%)	0 (0%)	13 (6.1%)
Black or African American	10 (16.1%)	3 (2.3%)	0 (0%)	13 (6.1%)
Native Hawaiian /Pacific Islander	1 (1.6%)	0 (0%)	0 (0%)	1 (0.5%)
White	35 (56.5%)	110 (84.6%)	22 (100%)	167 (78.0%)
Other	6 (9.7%)	10 (7.7%)	0 (0%)	16 (7.5%)
Hispanic or Latino	4 (6.5%)	10 (7.7%)	0 (0%)	14 (6.5%)
Relationship to Care Recipient
Father	22 (35.5%)	43 (33.1%)	9 (40.9%)	74 (34.6%)
Mother	33 (53.2%)	74 (56.9%)	12 (54.5%)	119 (55.6%)
Others (e.g., grandparents, uncles, aunts, family friend)	7 (11.3%)	13 (10.0%)	1 (4.5%)	21 (9.8%)
Positive Aspects of Caregiving	4.41 (± 0.72)	4.02 (± 0.72)	3.77 (± 0.70)	4.11 (± 0.74)
Perceived Burden	0.98 (± 0.63)	1.49 (± 0.81)	1.77 (± 0.59)	1.37 (± 0.78)
Care needs	1.04 (± 0.90)	1.91 (± 1.07)	1.85 (± 0.93)	1.65 (± 1.08)
Coping
Emotional Support	4.56 (± 1.82)	4.75 (± 1.80)	4.91 (± 1.57)	4.71 (± 1.78)
Instrumental Support	4.32 (± 1.91)	4.42 (± 1.71)	4.41 (± 1.56)	4.39 (± 1.75)
Venting	3.35 (± 1.49)	3.65 (± 1.63)	3.95 (± 1.29)	3.60 (± 1.56)

Notes. M = mean.

SD = standard deviation.