Table 2.
Specific quote examples
| Themes | Representative Responses |
|---|---|
| Motivational Factors | |
| Learning about hereditary cancer and genetic counseling | “I had been asking these questions about genetics and heard about genetic testing and immediately said, ‘Yes, yes. I want to do it. Sign me up.’” |
| Concern for family members | “‘Is my child at risk?’ That was my first, immediate, and still is a concern for me to this day.” “Just the unknowing of my father’s family history…is there any type of cancer that I should be aware to look for?” |
| Gaining information about current diagnosis or future care | “I wanted more information about how I got it [cancer].” |
| Affordability of genetic services | “I was told very early on that it would be affordable…and it was.” “It was one of those things when looking at it, it was just, okay, well, if we can’t afford it this trip, then we can make it a priority to be able to afford it next time we come out.” |
| Easing worry about personal or family cancer risk | “It was more of, I guess, the anxiety of not knowing… but that anxiety and the stress was minimal to what I could possibly learn.” “I think worry and stress were probably huge motivators. I was definitely immediately worried when I got diagnosed about my daughter.” |
| Barriers | |
| Scheduling and other “more pressing” priorities | “The worst part of it for me what just having to go to another appointment.” “I want to make sure that stuff is figured out where I can start actually doing the rest of my treatment first, before I start really looking into other things.” “I don’t see the necessity of going to a genetic counselor right now…I have other stuff on my mind.” |
| Worry about coping with genetic testing results | “You just have to believe everything is okay and you can’t live with the fear.” |
| Cost of genetic services | “That’s specifically been my biggest hurdle is I just don’t have the funds to just go see a [genetic counselor] with my personal funds.” |