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. Author manuscript; available in PMC: 2023 May 1.
Published in final edited form as: Hastings Cent Rep. 2022 May;52(3):9–17. doi: 10.1002/hast.1391

Table 1.

Eight Dimensions of Respect for Persons in PCTs

Dimension Respect-promoting practice(s)
Engaging Patients and Communities Actively involve patients and communities throughout the lifecycle of research
Promoting Transparency & Open Communication Provide information about research activities and the study purpose and communicate about study progress
Maximizing Agency Recognize and promote the decisional rights of individuals, including but not limited to decisions about research enrollment
Minimizing Burdens & Promoting Accessibility Minimize perceived subject burdens and facilitate research enrollment by those with differing abilities and situational contexts
Protecting Privacy & Confidentiality Ensure data shared only “under appropriate conditions, to appropriate parties, and for appropriate reasons”
Valuing Interpersonal Interactions Show kindness and appreciation in interactions with patient-subjects and take interest in their perspectives
Providing Compensation Offer payment as reimbursement for costs incurred as result of research participation or as compensation for additional time, effort, or inconvenience
Maximizing Social Value Deliberately design research to enhance likelihood it can generate future improvements in health or well-being