Table 1.
Eight Dimensions of Respect for Persons in PCTs
| Dimension | Respect-promoting practice(s) |
|---|---|
| Engaging Patients and Communities | Actively involve patients and communities throughout the lifecycle of research |
| Promoting Transparency & Open Communication | Provide information about research activities and the study purpose and communicate about study progress |
| Maximizing Agency | Recognize and promote the decisional rights of individuals, including but not limited to decisions about research enrollment |
| Minimizing Burdens & Promoting Accessibility | Minimize perceived subject burdens and facilitate research enrollment by those with differing abilities and situational contexts |
| Protecting Privacy & Confidentiality | Ensure data shared only “under appropriate conditions, to appropriate parties, and for appropriate reasons” |
| Valuing Interpersonal Interactions | Show kindness and appreciation in interactions with patient-subjects and take interest in their perspectives |
| Providing Compensation | Offer payment as reimbursement for costs incurred as result of research participation or as compensation for additional time, effort, or inconvenience |
| Maximizing Social Value | Deliberately design research to enhance likelihood it can generate future improvements in health or well-being |