Table 2.

Key functional requirements and delivery modes for data collection tools, identified from the second iteration of focus groups with clinicians and family members.

Domain	Considerations
Functional requirements	Using primarily standardized and validated scale-based tools, including Likert scales and multiple-choice questions Sparingly using open-ended questions (to ensure the patient’s voice is heard) Collecting repeated measurements (eg, postoperative days 1, 2, 3, 7) Ensuring brief survey completion times (no longer than 15 minutes) Using binary questions and branching logic to create dynamic surveys asking only relevant questions Providing save (and resume) functionalities Enabling notifications and reminders Having an opt-out option
Delivery modes	Primarily electronic Providing an alternate paper-and-pencil or telephone option Having both parent proxy and self-report versions
Compensation requirement	Remunerating participants for their time, expertise, and lived experience