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. 2022 Dec 1;23:121. doi: 10.1186/s12910-022-00852-2

Table 2.

Aggregate values for each of the four SPHN ethical processing principles for the five scenarios

Scenario Privacy Data fairness Accountability Respect for persons
Scenario 1 (data discovery on non-genetic data by a public institution) 6.25 5.67 5.67 5.50
Scenario 2 (data discovery on genetic data by a public institution) 6.75 5.25 5.75 6.50
Scenario 3 (data discovery on genetic data by a private institution) 6.91 5.33 6.17 6.67
Scenario 4 (erasure request before research) 6.42 3.83 5.75 6.50
Scenario 5 (erasure request after research) 6.58 4.42 5.92 6.50