Skip to main content
. Author manuscript; available in PMC: 2022 Dec 5.
Published in final edited form as: J Alzheimers Dis. 2022;88(4):1499–1509. doi: 10.3233/JAD-220196

Table 3.

Prevalence of elicited beliefs by racial/ethnic group

Belief Total Black (n=20) White (n=20) Hispanic (n=20)
Behavioral beliefs % % % %
“Bad things that would happen”
 Concern for privacy 15.0 10.0 10.0 25.0
 Being asked to participate in study with experimental drug or other treatment 40.0 45.0 30.0 45.0
 Lack of transparency 3.3 10.0 0 0.0
 Misuse or mismanagement of data 11.7 10.0 10.0 15.0
 Confronting personal cognitive decline 10.0 10.0 10.0 10.0
 Pressure to join study 8.3 5.0 15.0 5.0
 Nothing or don’t know 20.0 20.0 25.0 15.0
“Good things that would happen”
 Advance science or find a new discovery 60 65.0 60.0 55.0
 Help others 36.7 45.0 20.0 45.0
 Improve personal health or memory 21.7 20.0 30.0 15.0
 Personal interest or novelty 21.7 15.0 40.0 10.0
 Track personal progress or brain health over time 10.0 10.0 10.0 10.0
Important normative referents
 Spouse or partner 23.3 15.0 15.0 40.0
 Children 36.7 40.0 20.0 50.0
 Siblings 23.3 30.0 20.0 20.0
 Friends or neighbors 28.39 30.0 25.0 30.0
 Extended family 21.7 25.0 15.0 25.0
 Healthcare provider 5.0 0 5.0 10.0
Facilitators
 Convenience 26.7 25.0 25.0 30.0
 Modality 35.0 50.0 25.0 30.0
 Providing written information 36.7 40.0 45.0 25.0
 Results transparency 1.67 0 5.0 0
Barriers
 Enrolling would be demanding or difficult 10.0 15.0 5.0 10.0
 Health problems 3.33 10.0 0 0
 Inconvenient 23.3 25.0 25.0 20.0
 Technology or computer 16.7 15.0 25.0 10.0
 Transportation 6.7 5.0 5.0 10.0
 Having to travel to a physical location 10.0 10.0 15.0 5.0
 Lack of information 10.0 5.0 20.0 5.0
 Medication side effects 5.0 0 5.0 10.0
 Nothing or don’t know 18.3 25.0 25.0 5.0