Behavioral beliefs
|
% |
% |
% |
% |
“Bad things that would happen”
|
|
|
|
|
Concern for privacy |
15.0 |
10.0 |
10.0 |
25.0 |
Being asked to participate in study with experimental drug or other treatment |
40.0 |
45.0 |
30.0 |
45.0 |
Lack of transparency |
3.3 |
10.0 |
0 |
0.0 |
Misuse or mismanagement of data |
11.7 |
10.0 |
10.0 |
15.0 |
Confronting personal cognitive decline |
10.0 |
10.0 |
10.0 |
10.0 |
Pressure to join study |
8.3 |
5.0 |
15.0 |
5.0 |
Nothing or don’t know |
20.0 |
20.0 |
25.0 |
15.0 |
“Good things that would happen”
|
|
|
|
|
Advance science or find a new discovery |
60 |
65.0 |
60.0 |
55.0 |
Help others |
36.7 |
45.0 |
20.0 |
45.0 |
Improve personal health or memory |
21.7 |
20.0 |
30.0 |
15.0 |
Personal interest or novelty |
21.7 |
15.0 |
40.0 |
10.0 |
Track personal progress or brain health over time |
10.0 |
10.0 |
10.0 |
10.0 |
Important normative referents
|
|
|
|
|
Spouse or partner |
23.3 |
15.0 |
15.0 |
40.0 |
Children |
36.7 |
40.0 |
20.0 |
50.0 |
Siblings |
23.3 |
30.0 |
20.0 |
20.0 |
Friends or neighbors |
28.39 |
30.0 |
25.0 |
30.0 |
Extended family |
21.7 |
25.0 |
15.0 |
25.0 |
Healthcare provider |
5.0 |
0 |
5.0 |
10.0 |
Facilitators
|
|
|
|
|
Convenience |
26.7 |
25.0 |
25.0 |
30.0 |
Modality |
35.0 |
50.0 |
25.0 |
30.0 |
Providing written information |
36.7 |
40.0 |
45.0 |
25.0 |
Results transparency |
1.67 |
0 |
5.0 |
0 |
Barriers
|
|
|
|
|
Enrolling would be demanding or difficult |
10.0 |
15.0 |
5.0 |
10.0 |
Health problems |
3.33 |
10.0 |
0 |
0 |
Inconvenient |
23.3 |
25.0 |
25.0 |
20.0 |
Technology or computer |
16.7 |
15.0 |
25.0 |
10.0 |
Transportation |
6.7 |
5.0 |
5.0 |
10.0 |
Having to travel to a physical location |
10.0 |
10.0 |
15.0 |
5.0 |
Lack of information |
10.0 |
5.0 |
20.0 |
5.0 |
Medication side effects |
5.0 |
0 |
5.0 |
10.0 |
Nothing or don’t know |
18.3 |
25.0 |
25.0 |
5.0 |