Table 2.

Themes identified from principal investigator responses to the end of the Network cycle survey regarding the Family Network Collaborative (FNC).

I. What were the benefits of FNC family member involvement this cycle?

• Integration and optimization of family perspectives and priorities into Network research activities

• Guidance in interacting with families during follow-up data collection and in the dissemination of research results

• Assistance in communicating pediatric intensive care unit (PICU) science to families and the general public

II. Describe the current challenges you see in collaborating with our FNC members most effectively.

• Utilizing family participant time and effort most efficiently and effectively

• FNC family member input may not be representative of all PICU families

• Identifying the optimal way to facilitate FNC participation for both the investigators and the family participants particularly when family participant feedback is needed in a timely manner

• Securing financial resources to support the FNC and its members for their time and effort and to attend in

• Understanding the special skill sets of FNC family members