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. 2022 Nov 23;10:1060518. doi: 10.3389/fpubh.2022.1060518

Table 1.

Characteristics and findings of qualitative study included in scoping review.

References Country Study design Participants Findings
Lange et al. (15) Poland Qualitative study (semi-structure interviews) 8 family members ✓ Inadequate education and information, ✓ The benefit of obtaining prior information, ✓ Surprise, shock, and anger at the change in a relative's behavior.
Leigh et al. (16) Canada Qualitative descriptive study (focus groups) 3 family members ✓ Family detection of delirium is feasible and of value for patient care and coping by family members. ✓ Actively involving family members in delirium detection at the bedside may improve outcomes and experiences for both patients and family members.
Huang et al. (17) Taiwan Qualitative descriptive study (semi-structure interviews) 20 family caregivers ✓ Uncertainty among family caregivers of patients with delirium in ICUs can lead to feelings of fear and anxiety.
Pandhal et al. (18) England Qualitative descriptive study (semi-structure interviews) 9 relatives ✓ Lack of understanding about delirium amongst family members and how they could have supported delirium management. ✓ Families were keen to be involved in delirium. ✓ Interventions such as video-ICU delirium education have been found to be effective in educating family members about delirium management.
Hume (19) South Africa Qualitative study (semi-structured interviews, unstructured observation and
and focus groups)
2 family members ✓ The negative impact of the physical environment and pacing culture in intensive care. ✓ Damaging mistrust
Bohart et al. (20) Danish Qualitative study (semi-structure interviews) 11 relatives ✓ Lack of knowledge about delirium, ✓ Delirium as a second order problem, ✓ Lack of information on delirium by medical staff. ✓ Varied nature of delirium and different ways of dealing with it
Page et al. (21) UK Qualitative study (in-depth interviews) 15 family members ✓ Relatives experience the events associated with ICU hospitalization (including those associated with delirium) in a very real and ingraining manner. ✓ Family members may experience a different version of a critical illness episode than their relatives (patients).
Smithburger et al. (22) United States Qualitative study (purposeful sampling, interview) 10 family members ✓ Families of ICU patients want to be involved in the care and prevention of delirium. ✓ Need for communication between family and nursing staff