Table 1.
Characteristics and findings of qualitative study included in scoping review.
| References | Country | Study design | Participants | Findings |
|---|---|---|---|---|
| Lange et al. (15) | Poland | Qualitative study (semi-structure interviews) | 8 family members | ✓ Inadequate education and information, ✓ The benefit of obtaining prior information, ✓ Surprise, shock, and anger at the change in a relative's behavior. |
| Leigh et al. (16) | Canada | Qualitative descriptive study (focus groups) | 3 family members | ✓ Family detection of delirium is feasible and of value for patient care and coping by family members. ✓ Actively involving family members in delirium detection at the bedside may improve outcomes and experiences for both patients and family members. |
| Huang et al. (17) | Taiwan | Qualitative descriptive study (semi-structure interviews) | 20 family caregivers | ✓ Uncertainty among family caregivers of patients with delirium in ICUs can lead to feelings of fear and anxiety. |
| Pandhal et al. (18) | England | Qualitative descriptive study (semi-structure interviews) | 9 relatives | ✓ Lack of understanding about delirium amongst family members and how they could have supported delirium management. ✓ Families were keen to be involved in delirium. ✓ Interventions such as video-ICU delirium education have been found to be effective in educating family members about delirium management. |
| Hume (19) | South Africa | Qualitative study (semi-structured interviews, unstructured observation and and focus groups) |
2 family members | ✓ The negative impact of the physical environment and pacing culture in intensive care. ✓ Damaging mistrust |
| Bohart et al. (20) | Danish | Qualitative study (semi-structure interviews) | 11 relatives | ✓ Lack of knowledge about delirium, ✓ Delirium as a second order problem, ✓ Lack of information on delirium by medical staff. ✓ Varied nature of delirium and different ways of dealing with it |
| Page et al. (21) | UK | Qualitative study (in-depth interviews) | 15 family members | ✓ Relatives experience the events associated with ICU hospitalization (including those associated with delirium) in a very real and ingraining manner. ✓ Family members may experience a different version of a critical illness episode than their relatives (patients). |
| Smithburger et al. (22) | United States | Qualitative study (purposeful sampling, interview) | 10 family members | ✓ Families of ICU patients want to be involved in the care and prevention of delirium. ✓ Need for communication between family and nursing staff |