Table 3.
Overview of the questionnaires over time.
|
|
T0 (week 0) | Start SCCa | T1 (week 6) | T2 (week 12) | Start SCC | T3 (9 months) | |||||||
| About the person with PIMDb | |||||||||||||
|
|
Continence diary | ✓ |
|
✓ | ✓ |
|
✓ | ||||||
|
|
Resource measurement questionnaire | ✓ |
|
✓ | ✓ |
|
✓ | ||||||
|
|
EQ-5D-5L proxy 1c | ✓ |
|
|
✓ |
|
✓ | ||||||
|
|
MIPQd | ✓ |
|
|
✓ |
|
|
||||||
|
|
QOL-PMDe | ✓ |
|
|
✓ |
|
|
||||||
|
|
Goal Attainment Scalef |
|
|
|
✓ |
|
|
||||||
|
|
General questionnaire | ✓ |
|
✓ | ✓ |
|
✓ | ||||||
| About the caregiver | |||||||||||||
|
|
Work perception questionnaire—continence care | ✓ |
|
|
✓ |
|
|
||||||
aSCC: smart continence care, for the long-term care providers assigned to the SCC condition.
bPIMD: profound intellectual and multiple disabilities.
cThe caregiver (the proxy) is asked to rate the patient’s health-related quality of life in their (the proxy’s) opinion.
dMIPQ: Mood Interest and Pleasure Questionnaire.
eQOL-PMD: Quality of Life of Persons With Profound Multiple Disabilities.
fOnly applicable for the long-term care providers assigned to the SCC condition.