Table 2.
Responses to the Sarcoma Surveillance Survey
| Sarcoma Surveillance Survey Item | N (%) |
|---|---|
| 1. Getting follow-up imaging is disruptive to my daily schedule | |
| . Strongly disagree | 29 (44.6) |
| . Disagree | 21 (32.3) |
| . Neither agree nor disagree | 4 (6.2) |
| . Agree | 8 (12.3) |
| . Strongly agree | 3 (4.6) |
| 2. Getting follow-up imaging is disruptive to my family’s/caregiver’s schedules | |
| . Strongly disagree | 30 (46.2) |
| . Disagree | 18 (27.7) |
| . Neither agree nor disagree | 10 (15.4) |
| . Agree | 4 (6.2) |
| . Strongly agree | 3 (4.6) |
| 3. I have concerns about transportation to get to my follow-up imaging | |
| . Strongly disagree | 39 (60.0) |
| . Disagree | 15 (23.1) |
| . Neither agree nor disagree | 4 (6.2) |
| . Agree | 6 (9.2) |
| . Strongly agree | 1 (1.5) |
| 4. I am concerned about the cost of my follow-up imaging | |
| . Strongly disagree | 21 (32.3) |
| . Disagree | 14 (21.5) |
| . Neither agree nor disagree | 10 (15.4) |
| . Agree | 14 (21.5) |
| . Strongly agree | 6 (9.2) |
| 5. I have concerns about the radiation exposure from my follow-up imaging | |
| . Strongly disagree | 14 (21.5) |
| . Disagree | 15 (23.1) |
| . Neither agree nor disagree | 13 (20.0) |
| . Agree | 17 (26.2) |
| . Strongly agree | 6 (9.2) |
| 6. I have concerns about having to use an IV contrast for my follow-up imaging | |
| . Strongly disagree | 22 (33.8) |
| . Disagree | 18 (27.7) |
| . Neither agree nor disagree | 12 (18.5) |
| . Agree | 9 (13.8) |
| . Strongly agree | 4 (6.2) |
| 7. I am concerned about being in a small space and feeling “closed in” during my follow-up imaging | |
| . Strongly disagree | 38 (58.5) |
| . Disagree | 14 (21.5) |
| . Neither agree nor disagree | 5 (7.7) |
| . Agree | 4 (6.2) |
| . Strongly agree | 4 (6.2) |
| 8. I have concerns about needing additional tests (such as biopsy) if my imaging were to show something that might be cancer | |
| . Strongly disagree | 20 (30.8) |
| . Disagree | 14 (21.5) |
| . Neither agree nor disagree | 15 (23.1) |
| . Agree | 7 (10.8) |
| . Strongly agree | 9 (13.8) |
| 9. I prefer more frequent follow-up imaging | |
| . Strongly disagree | 21 (32.3) |
| . Disagree | 17 (26.2) |
| . Neither agree nor disagree | 19 (29.2) |
| . Agree | 4 (6.2) |
| . Strongly agree | 4 (6.2) |
| 10. I prefer to have less frequent follow-up imaging | |
| . Strongly disagree | 19 (29.2) |
| . Disagree | 16 (24.6) |
| . Neither agree nor disagree | 22 (33.8) |
| . Agree | 4 (6.2) |
| . Strongly agree | 4 (6.2) |