TABLE 1.
Characteristic | n | % |
---|---|---|
| ||
Project initiation | ||
Community partners | 6 | 3 |
Academic partners | 84 | 47 |
Both | 87 | 49 |
Other | 2 | 1 |
Types of community partners (not mutually exclusive) | ||
Patients or caregivers | 86 | 48 |
Health care (staff, providers, clinics, systems) | 135 | 75 |
Community (individuals, associations, organizations) | 153 | 86 |
Government (local, state, federal, tribal agencies) | 89 | 50 |
Policy makers | 45 | 25 |
Nationally based membership associations | 21 | 12 |
Other community partners | 52 | 29 |
Stage of partnership by funding type | ||
Early stage (planning grant/pilot or new collaboration) | 86 | 49 |
Single-project partnership | 42 | 24 |
Multiple-project partnership | 48 | 27 |
Primary study type | ||
Pilot | 8 | 5 |
Descriptive | 12 | 7 |
Intervention | 106 | 59 |
Policy | 5 | 3 |
Dissemination and implementation | 22 | 12 |
Some other type | 26 | 15 |
Multilevel intervention study | ||
Yes | 56 | 54 |
No | 48 | 46 |
Community advisory board separate from partnership | ||
Yes | 94 | 53 |
No | 85 | 48 |
Partnership has formal agreement | ||
Yes | 74 | 42 |
No | 103 | 58 |
Project developed evaluation instruments or measures | ||
Yes | 85 | 48 |
In process | 41 | 23 |
No/don’t know | 52 | 29 |
Who approved community participation in research | ||
Individual | 52 | 29 |
Community advisory board | 44 | 25 |
Local community agency | 53 | 30 |
Local government (tribal, health board, public health) | 40 | 22 |
Local IRB (community or tribal) | 50 | 28 |
|
||
M | SD | |
|
||
Length of project in years | 2.7 | 2.1 |
Length of partnership in years | 6.0 | 4.7 |
Note. IRB = institutional review board.