Table 1.
Description of the demographic and clinical characteristics of the young people (n = 68) and caregivers (n = 70), families and supports, reported as mean (M) and standard deviation (SD) or frequency (n and %).
| Demographic and Clinical Characteristics | M (SD) | n (%) |
|---|---|---|
| Young People | ||
| Age (years) | 10.82 (3.09) | |
| Gender | ||
| Male | 42 (61.76) | |
| Female | 26 (38.24) | |
| School Level | ||
| Lower primary (pre-primary to Year 3) | 25 (36.76) | |
| Upper primary (year 4 to 6) | 20 (29.41) | |
| Lower secondary (year 7 to 9) | 17 (25.00) | |
| Upper secondary (year 10 to 12) | 6 (8.82) | |
| Autism Diagnosis | ||
| Autism Spectrum Disorder | 57 (83.82) | |
| SCI Level 1 | 21 (38.89) | |
| SCI Level 2 | 25 (46.30) | |
| SCI Level 3 | 8 (14.81) | |
| RRB Level 1 | 26 (48.15) | |
| RRB Level 2 | 22 (40.74) | |
| RRB Level 3 | 6 (11.11) | |
| Asperger’s Syndrome | 2 (2.94) | |
| Autistic Disorder | 8 (11.76) | |
| Not Specified | 1 (1.47) | |
| Age of Initial Autism Diagnosis (years) | 5.70 (2.94) | |
| Autistic Signs and Symptoms (AMSE ≥ 5 threshold) | 5.12 (2.39) | 45 (68.18) |
| Co-Occurring Diagnosis | ||
| Attention Deficit/Hyperactivity Disorder | 25 (36.76) | |
| Communication Disorder | 13 (19.12) | |
| Global Developmental and/or Motor disorder | 12 (17.65) | |
| Intellectual disability | 15 (22.06) | |
| Vineland-3 | ||
| Adaptive Behavior Composite | 65.55 (14.76) | |
| Communication | 64.82 (18.60) | |
| Daily living skills | 71.36 (20.06) | |
| Socialization | 62.49 (17.61) | |
| Motor skills | 79.97 (18.43) | |
| Maladaptive Behavior (Internalizing) | 21.55 (1.61) | |
| Maladaptive Behavior (Externalizing) | 19.36 (2.50) | |
| Caregivers | ||
| Age (years) | 42.77 (7.52) | |
| Gender | ||
| Male | 3 (4.29) | |
| Female | 67 (95.71) | |
| Relationship | ||
| Parent | 66 (98.51) | |
| Grandparent | 1 (1.49) | |
| Health and Wellbeing 1 | ||
| EQ-5D-5L Visual Analogue Scale | 67.81 (19.39) | |
| Personal Wellbeing Index | 59.01 (22.73) | |
| Families | ||
| Family history of neurodevelopmental conditions | ||
| No | 31 (53.45) | |
| Yes | 27 (46.55) | |
| Cultural Diversity | ||
| First Nations 2 | 1 (1.52) | |
| Belongs to a specific cultural group 3 | 13 (19.12) | |
| Language other than English at home 4 | 8 (11.76) | |
| State Location | ||
| New South Wales | 14 (20.90) | |
| Queensland | 7 (10.45) | |
| Victoria | 25 (37.31) | |
| Western Australia | 21 (31.34) | |
| Geographical Location | ||
| Major city | 60 (89.55) | |
| Inner or outer regional center | 7 (10.45) |
Notes. 1 Data available for n = 27. 2 One young person—caregiver dyad. 3 Six young person—caregiver dyads, two young people and five caregivers. 4 Three young person—caregiver dyads and five caregivers.