Distal factors |
Upstream of data collection and analysis |
Mandating data collection |
Legal safeguards to ensure nondiscrimination |
Legislation incentivising data collection |
Prioritisation in policy |
Wider actions to enable improvements in data collection |
Preparing for data collection |
Achieving senior-level buy-in in organisations involved in data collection |
Engagement activities with citizens, patients, and communities |
Staff training programmes on purpose and mechanisms for data collection |
Developing guidance on how data can be used |
Demonstration of the value of data collection and analysis for organisations |
Data collection instruments, systems, and standardisation |
Data collection |
Using multidisciplinary groups to inform data collection instruments, systems, and standardisation |
Creating standardised definitions and coding practices across organisations |
Improving granularity of data fields |
Developing standardised processes for collecting and recording data |
Developing audit processes to monitor data quality aspects |
Creating IT systems to facilitate data collection |
Periodic revision of definitions and categories |
Methodological approaches to improve data quality and accuracy |
Data analysis |
Linking with other data sources |
Use of proxy variables |
Imputation |