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. 2022 Dec 13;31(1):2. doi: 10.1007/s00520-022-07470-z

Table 2.

Areas for improvement suggestions by women and specialist nurses mapped to the main themes

Readiness and motivators

  • Use during treatment (women and nurses)

  • Use for all patients prior to telephone review (nurses)

  • Hybrid (combination of face-to-face and ePRO) approach (women)

Practicalities

  • Questions — More opportunity for free-text comments, adding own question and being reminded of it on subsequent completions; add a generalist health question (women)

  • Facilitation/access and communication around community blood test/results (e.g. cover note for women to give to general practitioner; earlier bloods reminder; improved communication about blood results; more guidance on where can get bloods) (women)

  • More communication/feedback that clinical team have reviewed results (women)

  • More direction/specific instructions to access website for ePRO completions (women)

  • Improved reminder timing (women); instead of relying on reminders, tell patients to do just prior to telephone review/same day they get blood test (nurses)

Ideas for future use

  • Video consultations (women and nurses)

  • Use an alternative to CA125 (e.g. scans) for those whose cancer does not show in blood (women)

  • Links to peer support within ePRO questionnaire (women)

  • Change to an ad-hoc symptom alert app (nurses)

  • Enable ePRO system to generate document/letter to general practitioner to reduce workload (nurses)

  • More sophisticated alert system — i.e. comparing current to previous symptoms (nurses)