Table 3.
Subgroup Domain Score Comparisons: Two-Sample Independent t-Tests
| Domain | Subgroup | Mean | 95% CI | P |
|---|---|---|---|---|
| Single domain: Parents without other children (n = 9) vs. parents with other children (n = 38) | ||||
| Psychological and emotional aspects of care for the sibling(s) | ||||
| No siblings | 3.27 | −0.48, 7.02 | 0.02a | |
| One or more siblings | 7.55 | 6.01, 9.10 | ||
| Across all domains: parents currently caring for child (n = 33) vs. bereaved parents (n = 14) | ||||
| Communication between family and care team | ||||
| Currently caring for child | 6.08 | 4.99, 7.16 | 0.98 | |
| Bereaved | 6.05 | 4.00, 8.10 | ||
| Relationship between family and care team | ||||
| Currently caring for child | 5.53 | 4.24, 6.82 | 0.45 | |
| Bereaved | 4.61 | 2.21, 7.00 | ||
| Knowledge and skills of care team providers | ||||
| Currently caring for child | 6.63 | 5.12, 8.13 | 0.81 | |
| Bereaved | 6.94 | 4.93, 8.96 | ||
| Access to care | ||||
| Currently caring for child | 6.55 | 5.32, 7.79 | 0.29 | |
| Bereaved | 7.77 | 5.56, 9.97 | ||
| Physical care: Communication | ||||
| Currently caring for child | 5.39 | 4.46, 6.31 | 0.62 | |
| Bereaved | 4.96 | 3.31, 6.62 | ||
| Physical care: Symptom management | ||||
| Currently caring for child | 9.33 | 8.05, 10.60 | 0.28 | |
| Bereaved | 10.50 | 8.92, 12.07 | ||
| Psychological and emotional aspects of care: Parent | ||||
| Currently caring for child | 5.70 | 4.42, 6.99 | 0.97 | |
| Bereaved | 5.75 | 3.98, 7.53 | ||
| Psychological and emotional aspects of care: Child | ||||
| Currently caring for child | 8.78 | 7.23, 10.32 | 0.64 | |
| Bereaved | 9.43 | 6.92, 11.95 | ||
| Psychological and emotional aspects of care: Sibling(s) | ||||
| Currently caring for child | 6.84 | 4.99, 8.69 | 0.83 | |
| Bereaved | 6.49 | 3.86, 9.13 | ||
| Psychological and emotional aspects of care: Extended social network | ||||
| Currently caring for child | 1.04 | 0.30, 1.79 | 0.45 | |
| Bereaved | 0.57 | −0.18, 1.33 | ||
| Practical aspects of care | ||||
| Currently caring for child | 5.21 | 3.76, 6.66 | 0.24 | |
| Bereaved | 3.65 | 1.36, 5.95 | ||
| Social aspects of care: Parents | ||||
| Currently caring for child | 3.18 | 2.02, 4.35 | 0.31 | |
| Bereaved | 2.16 | 0.60, 3.73 | ||
| Social aspects of care: Child | ||||
| Currently caring for child | 2.02 | 0.96, 3.08 | 0.47 | |
| Bereaved | 1.40 | 0.56, 2.24 | ||
| Spiritual and religious aspects of care | ||||
| Currently caring for child | 0.20 | 0.09, 0.31 | 0.48 | |
| Bereaved | 0.28 | 0.01, 0.56 | ||
| Cultural aspects of care | ||||
| Currently caring for child | 0.14 | 0.07, 0.22 | 0.19 | |
| Bereaved | 0.07 | 0.03, 0.11 | ||
| Communication at the end of life | ||||
| Currently caring for child | 5.80 | 4.43, 7.17 | 0.51 | |
| Bereaved | 6.56 | 5.08, 8.04 | ||
| Caregiver support at the end of life | ||||
| Currently caring for child | 4.72 | 3.34, 6.10 | 0.04a | |
| Bereaved | 7.10 | 5.47, 8.72 | ||
| Ethical and legal aspects of care | ||||
| Currently caring for child | 2.04 | 1.09, 3.00 | 0.49 | |
| Bereaved | 2.65 | 0.99, 4.31 | ||
| Coordination of care | ||||
| Currently caring for child | 8.99 | 7.75, 10.23 | 0.84 | |
| Bereaved | 8.76 | 6.67, 10.85 | ||
| Continuity of care | ||||
| Currently caring for child | 5.82 | 4.43, 7.22 | 0.20 | |
| Bereaved | 4.28 | 2.56, 5.99 | ||
| Across all domains: Mothers (n = 44) vs. fathers (n = 3) | ||||
| Communication between family and care team | ||||
| Mothers | 6.10 | 5.13, 7.07 | 0.77 | |
| Fathers | 5.55 | −3.12, 14.21 | ||
| Relationship between family and care team | ||||
| Mothers | 5.13 | 3.97, 6.29 | 0.40 | |
| Fathers | 7.07 | −1.87, 16.02 | ||
| Knowledge and skills of care team providers | ||||
| Mothers | 6.72 | 5.51, 7.93 | 0.99 | |
| Fathers | 6.73 | −6.81, 20.28 | ||
| Access to care | ||||
| Mothers | 6.99 | 5.90, 8.08 | 0.60 | |
| Fathers | 5.84 | −3.88, 15.56 | ||
| Physical care: Communication | ||||
| Mothers | 5.10 | 4.30, 5.91 | 0.12 | |
| Fathers | 7.57 | 1.95, 13.19 | ||
| Physical care: Symptom management | ||||
| Mothers | 9.65 | 8.62, 10.68 | 0.28 | |
| Fathers | 10.08 | −0.11, 20.26 | ||
| Psychological and emotional aspects of care: Parent | ||||
| Mothers | 5.74 | 4.67, 6.80 | 0.89 | |
| Fathers | 5.44 | −1.23, 12.11 | ||
| Psychological and emotional aspects of care: Child | ||||
| Mothers | 8.75 | 7.42, 10.08 | 0.17 | |
| Fathers | 12.29 | 10.14, 14.44 | ||
| Psychological and emotional aspects of care: Sibling(s) | ||||
| Mothers | 6.80 | 5.29, 8.31 | 0.72 | |
| Fathers | 5.73 | −9.79, 21.25 | ||
| Psychological and emotional aspects of care: Extended social network | ||||
| Mothers | 0.91 | 0.32, 1.50 | 0.97 | |
| Fathers | 0.86 | −2.29, 4.01 | ||
| Practical aspects of care | ||||
| Mothers | 4.82 | 3.57, 6.06 | 0.64 | |
| Fathers | 3.67 | −7.66, 15.01 | ||
| Social aspects of care: Parents | ||||
| Mothers | 3.01 | 2.04, 3.99 | 0.27 | |
| Fathers | 0.92 | −0.11, 1.94 | ||
| Social aspects of care: Child | ||||
| Mothers | 1.79 | 0.98, 2.59 | 0.65 | |
| Fathers | 2.52 | −4.44, 9.48 | ||
| Spiritual and religious aspects of care | ||||
| Mothers | 0.24 | 0.12, 0.35 | 0.43 | |
| Fathers | 0.06 | −0.01, 0.14 | ||
| Cultural aspects of care | ||||
| Mothers | 0.13 | 0.07, 0.18 | 0.40 | |
| Fathers | 0.04 | −0.01, 0.08 | ||
| Communication at the end of life | ||||
| Mothers | 6.09 | 5.01, 7.18 | 0.63 | |
| Fathers | 5.06 | −2.87, 13.00 | ||
| Caregiver support at the end of life | ||||
| Mothers | 5.50 | 4.36, 6.64 | 0.60 | |
| Fathers | 4.33 | −5.20, 13.87 | ||
| Ethical and legal aspects of care | ||||
| Mothers | 2.34 | 1.50, 3.19 | 0.26 | |
| Fathers | 0.49 | −0.88, 1.85 | ||
| Coordination of care | ||||
| Mothers | 8.89 | 7.81, 9.96 | 0.78 | |
| Fathers | 9.48 | 1.41, 17.55 | ||
| Continuity of care | ||||
| Mothers | 5.30 | 4.20, 6.41 | 0.67 | |
| Fathers | 6.27 | −7.75, 20.29 | ||
a
Significant at P < 0.1 level.