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. 2022 Dec 12;8(2):e002643. doi: 10.1136/rmdopen-2022-002643

Table 1.

Socio-demographic characteristics of the respondents

Age N. %
 21–30 13 10.08
 31–40 55 42.64
 41–50 42 32.56
 51–60 10 7.75
 61–70 5 3.88
 71–80 4 3.10
Countries
 Australia 3 2.33
 Belgium 4 3.10
 Denmark 9 6.98
 Finland 3 2.33
 Italy 4 3.10
 Lithuania 8 6.20
 Portugal 3 2.33
 Spain 12 9.30
 UK 68 52.71
 USA 3 2.33
 Other European contries 8 6.20
 Other non-European countries 4 3.10
Level of education
 Below high school diploma 6 4.65
 High school diploma 27 20.93
 Bachelor’s degree 56 43.41
 Masters’ degree or higher 40 31.01
Employment status
 Employed/self-employed 94 72.87
 Other 8 6.20
 Retired 5 3.88
 Student 1 0.78
 Unable to work due to my disease 12 9.30
 Unemployed 9 6.98
Marital status
 Married or in a relationship 111 86.05
 Separated or divorced 11 8.53
 Single 6 4.65
 Widowed 1 0.78
Do you live with a caregiver?
 Yes 8 6.2
 No 121 93.8
Do you live with
 Family member (partner, member of the family) 122 94.57
 Other (friend, colleague, etc) 0 0
 Alone 8 6.2