Table 4.
Overview of register linkages in the SDPP cohort
| Data provider | Register/database | Available information |
|---|---|---|
| Register Centre Västra Götaland, Sweden | National Diabetes Register | Has an 87% coverage. Includes information on year of diagnosis, physical activity, blood pressure, HbA1c, BMI, smoking habits, lipids, diabetes duration, complications, and treatment4 |
| National Board of Health and Welfare | National Patient Register | Covers almost 100% of inpatient care from 1987 and onwards and about 80% of the specialized outpatient doctor visits from private and public caregivers since 20013 |
| Swedish Medical Birth Register | Includes data from 1973 from prenatal care (e.g. pregnancies, age and smoking habits), delivery care (e.g. fetal presentation, mode of delivery, analgesia and anaesthesia) and neonatal care (e.g. anthropometric measures, duration of pregnancy, and Apgar scores)3 | |
| Swedish Cancer Register | Data from 1958 onwards; the overall completeness and data quality are very high. Contains data on selected confirmed tumours, site of tumour, histological type, stage and date of diagnosis3 | |
| Swedish Cause of Death Register | Data from 1961 onwards; includes the underlying and contributory causes of death and date of death among individuals registered in Sweden at the time of death3 | |
| National Prescribed Drug Register | Includes data from 2005 onwards on selected dispensed prescription drugs in Sweden (e.g. date of prescribing and dispensing, amount, brand name, formulation and the package of the dispensed item)3 | |
| Statistics Sweden | Longitudinal integration database for health insurance and labour market studies (LISA) | Includes sociodemographic data from 1990 onwards on all individuals aged 16 years and older (e.g. country of birth, education, occupation, employment status, income and family income, sick leave and disability pension)27 |
| National Census in Sweden 1960, 1965, 1970, 1975, 1980, 1985, 1990, 2011 | Includes individual and household data (e.g. educational level, occupational status, income, housing and size and type of household)28 | |
| Geodatabase | Includes information from 1982 onward on regional divisions and coordinates of properties in Sweden28 | |
| Multi-generation Register | Includes data from 1961 onwards and on those born in 1932 or later. Links the index persons to their biological or adoptive parents, allowing us to identify first- and second-degree relatives28 | |
| Total Population Register | Includes data from 1968 onwards, e.g. on births, immigration and emigration, deaths, civil status and citizenship.3 | |
| Region Stockholm | Stockholm Regional Healthcare Data Warehouse (VAL) | Includes data from 1997 onwards on health care utilization from primary and specialist outpatient care and in-hospital care. Includes diagnoses and service provider information5 |
| Stockholm County Council Public Health surveys from 2002, 2006, 2007, 2010, and 2014 | Includes extensive data on randomly selected individuals aged 18 and older living in Region Stockholm. (e.g. health-related data and lifestyle, perinatal, familial, socioeconomic, demographic factors)29 | |
| Military archives | Military conscription register | Includes data on men who underwent military conscription at age 18 from 1969 onwards (e.g. BMI, blood pressure, fitness and cognitive tests)30 |
BMI, body mass index.