Table 3.
Summary of family-engagement Interventions.
Author (year) | Intervention | Purpose | Main content | Target users | Interaction (two-way communication) | Personalization (tailoring) | TIDieR framework (1-12) |
---|---|---|---|---|---|---|---|
Bastin et al. (2019) | Video (television) -based education program | To combine video instruction to patient/family education | Introduction to the ICU; fall prevention; pain management; preventing health-acquired infections | Patients and families | Not described | Not described | 8 |
Carlucci et al. (2020) | Remote family conference and patient visits via phone and video calls | To enhance family members' participation and provide daily clinical updates | Daily clinical updates; medical information pertinent to the patient's condition; | Family, patient, clinicians | Communicating families' concerns with clinicians | Provision of medical information pertinent to the patient's condition | 9 |
Chiang et al. (2017) | Tablet-based family education package | To educational and informative content by comprehensive and standardized information and systematic way of provision using audiovisual features | Information about ICU care and specific information of patient's disease or specific treatment | Family | Not described | Content was explained depending on the needs of individual patients | 8 |
Cox et al. (2019) | Interactive web-based decision aid | To support the shared decision-making process for prolonged mechanical ventilation | Definition of prolonged ventilation; decision options for goals of treatment; function of surrogates in decision making; family support needs | Family | Basis of an algorithm informed by responses within the tool | Individualized prognosis | 8 |
Dalal et al. (2016) | Patient-centered toolkit: A web-based patient-facing and provider-facing tools | To enhance collaborative decision making via education and patient-family-provider communication | Navigate plan of care; establish recovery goals, input preferences and rate priorities; access medical records; educational content | Family, patient, clinicians | Exchange questions and answers among patients, families, and clinicians;Communication among clinicians | Tailored safety tips and reminders | 10 |
de Havenon et al. (2015) | Conference calling or Skype teleconferencing before provider-family meeting | To improve robust decisions about patient care by increasing families' participation in the decision-making process and enhancing the effectiveness of family meetings | Not described | Family, clinicians | Not described | Not described | 8 |
Ernecoff et al. (2016) | Interactive, tablet-based communication and decision support tool | To prepare the family for conversations with clinicians; to give clinicians tailored information about the family and patient before the family meeting; to promote a personalized relationship between clinician and family | Orientation to the ICU; principles of surrogate decision making; question prompt list and opportunity to write down questions; a values clarification exercise; education about treatment pathways; eliciting surrogates prognostic information; psychosocial resources. | Family, clinicians | The tool is programmed to interact with families;Clinicians can view families' input | Tailored information was communicated with clinicians | 9 |
Gorman et al. (2020) | Real-time SMS updates | To simply provide five pre-written messages related to key information about patient care to families during the ICU care | Five specific clinical landmark events were sent at ICU admission; extubation; morning ward round; decision to discharge; and discharge from the ICU. | Family | Not described | Not described | 8 |
Mistraletti et al. (2017) | Website information tool | To provide families with knowledge of the ICU environment and patient's illness and enhance communication between providers and families | Knowledge of ICU environment and treatment; family's role during the ICU care; illustration of post-ICU discharge expectations; emotional validation; stories of former ICU patientsor relatives | Family | Not described | Not described | 8 |
Pignatiello et al. (2019) | Two electronic decision aid tools:video-basedavatar-based | To support communication and decision-making between surrogates and clinicians | Video-based decision aid: a short visual content discussing strategies for effective communication between providers and families, advocating for loved ones, and alternatives to consider.Avatar-based decision aid: an interactive virtual decision support led by an avatar decision coach; sharing patients’ story, patient's background, assessing their needs, discussing care plan | Family, clinicians | Video-based decision aid: Not applicableAvatar-based aid: two-way communication between family caregivers and a critical care team to discuss the care plan | Video-based decision aid: Not applicableAvatar-based aid: to provide decision coaching based on family caregiver's input and needs | 8 |
Sasangohar et al. (2020) | Virtual ICU technology: Virtual visitation via smartphones, tablets, or computers | To enable virtual family members in the ICU room | Not applicable | Family, patient | Not applicable | Not applicable | 7 |
Sucher et al. (2011) | Robotic telepresence multidisciplinary roundings | To augment the multidisciplinary rounding process | Not applicable | Family, patient, clinicians | Real-time two-way audio-video communication among patients, families, and clinicians | Not applicable | 9 |
Suen et al. (2020a,b) | Interactive web-based family support tool | To support communication and shared decision-making for surrogates | Orientation to the ICU, emotional support, self-care tips, and families' expectations, questions, and understanding of patient's values and preferences, | Family, clinicians | Surrogates complete modules prior to a scheduled family meeting;Clinicians receive a one-page summary of surrogates' responses prior to family meeting surrogates' responses | Not described | 8,9 |
Ziyaefard et al. (2019) | virtual social network-based education program via social media | To alleviates family caregiver anxiety and satisfaction | information about ICU conditions, hospital rules, and postoperative clinical situations, principles of taking care of patients at home and hospital, necessary diet and medications, level of patients’ activity at home, wound management, rehabilitation of patients | Family caregivers | Not described | Not described | 8 |