TABLE 4.
The correct answer rate for the overall level of CCKNOW and for each item and category.
| The item and category of CCKNOW | Parents who answered correctly (%) |
|---|---|
| General knowledge (11 questions) | 473 c (person-time) (36.13) a |
| Item 3: Proctitis: is a form of colitis that affects the rectum or back passage only | 40 (33.61) |
| Item 4: Patients with inflammatory bowel disease are probably cured if they have been symptom free for 3 years: False | 79 (66.39) |
| Item 5: Inflammatory bowel disease runs in families: True | 21 (17.65) |
| Item 8: The terminal ileum: is a section of the bowel just before the large intestine | 34 (28.57) |
| Item 9: During a flare up of inflammatory bowel disease: The platelet count in the blood rises | 28 (23.53) |
| Item 15: Which one of the following statements is false? Ulcerative colitis is least common in Europeans and North Americans | 56 (47.06) |
| Item 17: The length of the small bowel is approximately: 20 feet | 31 (26.05) |
| Item 18: The function of the large bowel is to absorb: water | 44 (36.97) |
| Item 19: Another name for an ileorectal anastomosis operation with formation of a reservoir is: pouch | 8 (6.72) |
| Item 22: There are millions of tiny “hairs” in the small bowel to increase the absorptive surface. They are called: Villi | 47 (39.50) |
| Item 23: Which one of the following is not a common symptom of inflammatory bowel disease? Headache | 85 (71.43) |
| Diet knowledge (2 questions) | 111 (person-time) (46.64) a |
| Item 1: People with inflammatory bowel disease are not allowed to eat dairy products: False | 72 (60.50) |
| Item 2: Elemental feeds are sometimes used to treat Crohn’s disease and ulcerative colitis. They: are very easy to digest | 39 (32.77) |
| Drug knowledge (5 questions) | 168 (person-time) (28.24) a |
| Item 10: Steroids (such as prednisolone/prednisone/budesonide/hydrocortisone): can be given in the form of an enema into the back passage | 14 (11.76) |
| Item 11: Immunosuppressive drugs are given to inflammatory bowel disease patients to: reduce inflammation in the bowel | 74 (62.18) |
| Item 12: Sulfasalazine: can be used to reduce the frequency of flare ups | 11 (9.24) |
| Item 13: An example of an immunosuppresive drug used in inflammatory bowel disease is: Azathioprine | 54 (45.38) |
| Item 16: Male patients who take sulphasalazine: have reduced fertility levels that are reversible | 15 (12.61) |
| Complication knowledge (6 questions) | 220 (person-time) (30.81) a |
| Item 6:Patients with inflammatory bowel disease can get inflammation in other parts of the body as well as the bowel: True | 66 (55.46) |
| Item 7:A fistula: is an abnormal track between 2 pieces of bowel or between the bowel and skin | 29 (24.37) |
| Item 14: If a woman has Crohn’s disease: her pregnancy will always have complications | 10 (8.40) |
| Item 20: If a part of the bowel called the terminal ileum is removed during surgery the patient will have impaired absorption of: Vitamin B12 | 9 (7.56) |
| Item 21: Patients with IBD need to be screened for cancer of the colon. Which one of the following statements about screening is true? Screening should be offered to all patients with ulcerative colitis which has lasted for 8–10 years | 19 (15.97) |
| Item 24: If a child has inflammatory bowel disease; he/she probably will not: be as tall as his or her friends | 87 (73.11) |
| Total | 972 (person-time) (34.03) b |
a
The correct answer rate of knowledge in this category.
b
The correct answer rate of knowledge in all question items.
c
Person-time, One person answered correctly for one time was defined as one person-time.
CCKNOW, The Crohn’s and Colitis Knowledge questionnaire; IBD, Inflammatory bowel disease.